Hey Pikka, Acttully CPPS is a new one for me, being a guy I don't have quite the same experiences with female problems.
I undersdtand being anoyed with using a catch all syndrome that may used as a DX when they can't find another problem. Kind of ike failed back surgewry syndrome, what does that mean, what failed. It's a descriptive DX ,obviously a specific DX you feel you can find treatment for would be better. We would all rather have a specific problem we can fix than some DX that just describes what we experience.
You did mention IC and one of the more published outspoken PM docs is in memphis and specializes in IC, He may be able to guide you to someone in your area that may be more help. What exactly seperates IC/ftom CPPS or PID.
Dr brookoff is well published and this is his specilaty although he treats all types of painful conditions.
His name is Dr danial Brookoff and heer are a couple of his articles. I would try to make contact with him. Just cut and paste the addys into your browser or do a search for Dan Brookoff
[url]http://www.hosppract.com/issues/2000/07/brook.htm[/url]
[url]http://www.hosppract.com/issues/2000/09/brook.htm[/url]
It is easy to start confusing something that started as one problem like IC or PID and then spreads. There is a physiological and biochemical reason for this as explained in the first article. Acute pain is very different from chronic pain and can spread as it Increases in neuro inflamatory agents are released with the CP process and nce localized panin can be diffused and spread over an entire aresa, much like RSD, starts with an inury to something like a hand and ankle and spcan spread into CRPS chronic regional pain syndrome, It just means it's spread nthrough a specific region rather than being clearly the old injury.
The IC sites would probably be more familiar with the tratment options for IC or CPPS. Whatever the source, pain is a very destructive force in some peoples life and not addressjing it can cause problems like your experiencing now.
My experience with TP injections has ben varried, The doc either seems to have the touch or doesn't. Trigger points are usually given to break up muscle spasm, not adhesions and the peppering method of hitting as many places as possible doesn't seem to be as effective as focused TP injections.
If you don't get good results from one doc it dosn't mean this modality can't be beneficial because so muc depends on th docs touch and knowledge of anatomy and simply being able to find the right spot versus hitting as many spots as they can get out of a couple needles full of juice. TP's noramlly consist of a numbing agent and an anti inflamatory, there are plenty of anti in=flamatories to choose from so I can't say if it's goning to be steroidal, NSAID or a naturally occuring anti inflmatory agent.
My wife is presently getting much better relief since they added Nemanda into the mix of meds, This parkinsons med also blocks the N*** receptor which helps with neuro pain, pain tolerance and opiate tolerance, blocking the receptor can also slow or stop the flow of harmful enzymes and neurotransmitters that are created from N*** activation like substance P and the calcium channel blocker NK-1.
The first article explains this too. It sounds complicated but once you read it a few times you should be able to pick out the relavant parts and have a better understanding of the biochemisty invloved in CP and the ways to reverse some of the damaging effects of the new neurotransmitters and pathways created that allow CP to continue on for months and years.
TP's aren't particular painful when focused but when they pepper an entire area they do seem to cause pain after the numbing agent wears off.
Honestly I would seeif you can contact DR B and by email or phone and see if he can recomend someone in your area or just recomend some of the treatment methods he uses and then you have to find docs familiar with that modality.
Sorry I couldn't be more help, I'm just a little out of my own ballpark when it comes to these types of problems.
IC/Chronic Pelvic Pain Syndrome
Linear Mode
