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Old 11-22-2004, 02:29 PM   #1
bullun
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Join Date: Oct 2004
Posts: 360
Unhappy No diagnosis, what do you think?!

I've been to my primary doctor several times, and a GI specialist. Initially they debated a ulcer due to abdominal pain I had when eating and a gnawing hunger pain that would not subside with food. But then the digestive upset began. Several times a day of diarrhea and abdominal pain almost all the time. Occassional bloating. By other tests we ruled out parasites, blood in the stool or fat.

So my GI specialist went through their drill of questions and inquiries. They took some blood work for Celiac Disease or a gluten intolerance. As we suspected due to a dietary change this may be the issue. However, she also mentioned possiblity Colitis, Crohns disease or IBS. The bloodwork came back negative. I called my GI's office to receive these results. Had they been positive they told me, they would of pursued informing me of dietary changes. Since t hey were negative, they had nothing more to say. No follow-up appointments or anything.

Does this seem like an inefficient doctor to you? I felt that at least they shoudl of had me back to discuss further potential causes, or even to just label me IBS like everyone else gets labeled with these symptoms. (I Be Stumped as some may call it.) But my doctor has not pursued any of these avenues.
Time to see a new doctor? What do you think?

I have gone on my own and switched to a gluten free diet, and it has seemed to help tremendously the last four days. Today is the only day I've made multiple bathroom runs again. I am fearful of missing something potentially worse. Sometimse I think my own self-diagnosis is best, as these doctors seem to be uninterested except for collecting their fees.
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Old 11-22-2004, 05:10 PM   #2
Losec20mg
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Re: No diagnosis, what do you think?!

yes exactly what you said, doctors are there to make money..and, unfortunatly we are the rats that they experiment on..sorry but, thats exactly the way i see it..yup..Anyhow since im celiac that means that my sisters and, brothers might have it aswell,,and, they do all have symtoms of this disease..Now my sister had IBS for sooo many years she also had lots of stomch cramps and, bloating, reflux..etc.. she started a gluten free diet without getting tested..i mean its simple the diet is not really a diet its just "healthy eating".. fruits, veggies, meats, corn or rice pasta, rice(risotto)..milk cheese, corn bread..etc, legumes..ok, so let me get this straight, if you went gluten free and, felt alot better..then voila..or problem is wheat..then just stay away from it..thats it, this diseaes is very hard to diaganose..doctors often miss the diagnose, leaving you confused and, with all of those symtoms. So if that diet makes you feel better, just do it.
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Old 11-22-2004, 05:23 PM   #3
bullun
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Join Date: Oct 2004
Posts: 360
Re: No diagnosis, what do you think?!

Mario,
Thanks.. my only real concern now is the tightness in my chest. Which I didn't mention before. I don't believe its heartburn. Its constant today. I have drainage from a sinus cold down the back of my throat causing a cough due to throat irritation. But the tightness in the center of my chest remains, but does not seem to impair me from taking a full deep breath. I don't feel my breathing is hindered at all. Although the tightness feels exactly like a horrible chest cold. (When it moves to your lungs and you're coughing all the time.)

Any ideas on what this is? I haven't read aynthing about it being Celiac related! And I'm so SICK of the doctors! You're right..rats.. especially at a teaching hospital!!!
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Old 11-23-2004, 07:55 PM   #4
Losec20mg
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Re: No diagnosis, what do you think?!

hi there did you get your cholestorol checked..??
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Old 11-23-2004, 08:15 PM   #5
twisten
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Location: alberta
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Re: No diagnosis, what do you think?!

It took a long, long time for me to get diagnosed with crohns because my blood tests didn't always come back abnormal. I'd ask to be retested again in a month or so.
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