Pineal Cyst

[BCarp0707]

I have a pineal cyst and my symptoms are getting worse. I have terrible headaches, blurred vision, extreme fatigue. I'm being told not to worry about anything.

I am trying to find out is there anyone that knows of a surgeon in Florida that can help? Or is there anyone that has had there cyst removed, if so who and where was it performed?

Any help would be appreciated.

Can anyone help me?

[This message has been edited by BCarp0707 (edited 09-14-2003).]

[BCarp0707]

Originally posted by BCarp0707:
I have a pineal cyst and my symptoms are getting worse. I have terrible headaches, blurred vision, extreme fatigue. I'm being told not to worry about anything.

I am trying to find out is there anyone that knows of a surgeon in Florida that can help? Or is there anyone that has had there cyst removed, if so who and where was it performed?

Any help would be appreciated.

Can anyone help me?

[This message has been edited by BCarp0707 (edited 09-14-2003).]

[mojen]

Try Dr. Lu. He's a neurosurgeon in Winter Park...near the intersection of SR 50 and Mills (17-92). I have a 2.5mm cyst that he is monitoring. He described a surgical option he was willing to perform if my symptoms get to be too much to bear.

Originally posted by mojen:
Try Dr. Lu. He's a neurosurgeon in Winter Park...near the intersection of SR 50 and Mills (17-92). I have a 2.5mm cyst that he is monitoring. He described a surgical option he was willing to perform if my symptoms get to be too much to bear.

What kind of symptoms do you experience?
I had an MRI done April of this year. I was told that I have a Pineal Cyst but they didn't tell me what size it was. I was told "not to worry about it" that it would only cause me problems if it got larger and started pressing on surrounding areas. I have many symptoms that four of my doctors conclude is from Fibromyalgia. $10,000 and four doctors and I am only worse now than before. I'm so disgusted and fed up.

I also suffer from chronic severe insomina and cannot sleep unless I take 20/25mg of Ambien a night. If I don't take it then I'll stay awake 2 sometimes 3 days. This last weekend I was doing research on the net about sleep problems and discovered that the Pineal Gland is the only area in your brain that produces Melatonin! All my doctors know of my severe sleep problems but no one mentioned anything about if having a cyst there could cause sleep deprevation. This may sound really ignorant but is it possible that my cyst has cause the pineal gland to STOP producing melatonin?

What kind of surgical procedure is needed to remove the cyst? Aspiration or actual opening the scull and cutting?

Thanks for listening.

[Dodger8]

There is much info available about pineal cysts. My daughter had a pineal cyst for many years. She recently had surgery.

Pineal cysts definitely cause many problems.

You could have your melatonin checked at Great Smokies Diagnostic Lab. You could probably do this through the mail. We did. This was the most accurate test we could find to check this. It checked the level different times of the day. It is a painless test which checks saliva.

I have 13 medical journal articles about pineal cysts and they suggest they need to be surgically removed. One was written by our US Government at Walter Reed Army Medical Center. If you are interested in the info please contact me at glorybound101@hotmail.com.

If you have visual problems please suggest a VEP (visual evoked potential) with is painless and will show if you have nerve damage behind the eyes from the cyst.

Also, an EEG may be a good idea too. If you have tremors, jerking of your body, staring, or blacking out
you may be having seizure activity.

I hope and pray this is helpful.

Love and prayers