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Old 06-02-2001, 09:42 PM   #1
NancyH
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Join Date: Apr 2001
Location: Washington State
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Question Rosalita1, what is cowdens syndrome?

I have looked throughout the web and have only found genealogy information. Is there another name it can go by? I'm interested tofind any info on it.
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Old 06-04-2001, 10:25 AM   #2
rosilita2
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its a rare genetic disease. the only reason i said it because you talked about the various cysts and especially the breast one. its a mutation of the p1o gene forms various cysts, tumors and tends to cause breasts problems. its so rare most doc's don't know what it is. its very undiagnosed. its linked to cysts, tumors of breast thyroid and various parts of the body.
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Old 06-05-2001, 12:49 AM   #3
NancyH
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Thankyou Rosilita, maybe I can find it in the rare genetic disease line in my medical encyclopedia. It sounds reasonable as I have cysts and benign tumors in all the odd places anyway.
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