My mom has had these same symptoms for a year now, all except the swollen nodes. The doctors believe that lymphoma will show itself. The wait must be maddening for you and your family. Has lupus been ruled out? How about malaria? Was there a bone marrow aspiration and biopsy? If so, it is possible that there are lymphoma cells there, but that they are "patchy" and not widely dispersed. In that case, it is possible that the needle just MISSED them. Also, a good question to ask is: was the section from the needle biopsy a FROZEN section, which can be done quickly, or a PERMANENT section, which takes overnite and is more reliable. You can always have them repeat the needle biopsy. Has there been a full body CT scan, full body MRI, PET scan? Were the gram negative tests done? What is the hematocrit, what is the SED rate? What about immunoglobulin?
Give me some more info if you can, because I have been researching this stuff for several months.
Michael (misha123)