To those of you out there with mild spasticity, do you find that you are easily affected by stress or demands of daily life? How does it express itself and what tactics have you found to deal with it?
I am 34 and pretty new to a CP diagnosis. I'm trying to learn the balance of energy consumption and preservation in my daily activities. Since I am deemed "mild", hard to know what part is the CP and just "normal" fatigue. Tricky!
i'm 26 y/o & i find that i have difficulty with the things you mentioned. it has gotten worse over the past 10 years or so. i don't have any ideas on how to manage. i do poorly in that department. i am to the point where i think that part time is the most i really should work. i use a med called neurontin & love it.
LAS
Interesting you mention that about the fatigue worsening over the years. I find that there is no predictability about what brings the stiffness or fatigue on; things that never used to do so produce fatigue now. I used to run and do more challenging physical activity and did not feel quite the same way in the hips, etc. I know it could be age, too.
I tried Neurontin for spasms after a surgery and had balance problems. How do you find it?
I am 38 and I have mild CP on the left side. Until 3 years ago you would never have known but since then I have had problems with stiffness, range of motion problems, back pain and and hip pain.
I was sent to PT and got a whole rigement of stretches that believe it or not really do work. I have also been receiving botox injections that have helped with a dropped foot and hopefully with my latest problem of my foot turning in and my knee starting to cross over.
Fatigue is a huge problem for me!!!! I am always worn out after a lengthy walk anywhere and I have slowed down tremendously. I have been working with a personal trainer who is trying to get me into shape to help battle some of the fatigue and I believe that is starting to help too. My workout is VERY low impact but by taking before and after tests I have been showing some improvements.
Really a positive attitude and having someone to talk to helps the most. With that you have the power to overcome a lot of the fatigue problem that is being brought on somewhat by frustration alone.
Keep your chin up and your smile on! Tell yourself that you can beat the fatiuge!
Hang in there!
Hi Lastramy:
Your response raised some interesting points. Could use your help understanding a few things:
1) Did the doctors assess your case as mild? And on what basis? (I've gotten varying assessments and I am never quite sure how the doctors determine what constitutes mild vs moderate. All seems subjective to me and the effects certainly don't feel mild!)
2) Is it typical for symptoms that might not have been problematic before to become so later? I know CP is not progressive, so I wonder what causes this.
You are right that being positive helps manage some of the fatigue. I have had varying success with PT and find that sometimes the stretches make things worse. The weather certainly does affect symptoms and hope the warmth of the spring keeps things stable for a bit!
Battling fatigue
Linear Mode
