MMEC...
Your post brought tears to my eyes, because it's so firmilur. I'm 17 years old and have been fighting an unexplained illness since January of 99. I've been to over 50 doctors. The 2nd one we went to was a Nuerologist. It was our 1st appointment seeing him, and he ran his neurologist tests on me, after 10 minutes, he sent me out of them room. (I was on crutches at the time cuz i couldnt put any weight on my left leg at all, and bearly on the right). So later that day, I heard my mom talking on the phone saying that the dr said to take my crutches away, that this was all in my head, and i just wanted attention, and that i just didnt want to go to school. I was in 8th grade at the time, so school was my life. Socializing is still my whole life. So, needless to say we never went back to him. Doctors tend to say its all in your head, when either..
A) They dont know whats wrong,
B) They dont want to research it and help you
C) They think just cuz theyre doctors, you'll believe anything they say.
It's 4 years later and I still dont have a diagnosis, and i'm getting worse. It hurt so bad for him to tell my mom what he did. My mom didnt believe it for a second, cause she knows better, but just the thought, kills me inside. My suggestion is to see other doctors, specialist. Maybe an infectious disease dr? Where are you from? If you're near me, I have a good one to refer you to. It's hard being so young, and having these kind of problems, I couldnt even imagine if mine started at 10. You said the dr said that your little girl is "too intouch with how her body feels", I want to see the doctors go through what we have to , and see what they say then. It's unbelievable how insensitive they are when you think they're there to help you. I question myself about my illness all the time, i mean i know its there and i know how bad it is, but not having a diagnosis, is so difficult. If you want to contact me, please email me at LtLnug@aol.com, good luck.
-Nug
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