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Old 11-07-2002, 10:34 AM   #1
mmec
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Join Date: Nov 2002
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Post 10 yr. old sick since mid Aug. Dr.says in her head

Our 10 year old daughter has complained of headache, sore throat, stomach ache since mid Aug. Went to Dr. Said was fine. We asked for strep test. Dr. said not necessary. Went back. All symptoms worse plus now dizzy and pale. Asked for strep again and again told not needed. Asked about iron and cbc. Dr. ran iron but not cbc. Dr. said she doesn't believe in rountine cbc's. Iron was low normal. Headaches got worse and had ct scan to look at sinus. No cold or allergy symptoms though. CT normal. Sept. 11 our daughter gets up with 104.6 degree temp. Back to Dr. Says our daughter looks septic and has worse throat she has ever seen. Runs strep test. Comes back positive in less that one minute.Put on amoxil for 10 days. Headaches better but still dizzy, feels nausea, very pale. Finishes meds and never misses a dose. Positive for strep again on Oct. 10. Headache back plus all the other symptoms. Again on Amoxil. Finishes meds and is positive for strep again on the 22nd of Oct. Extreme fatigue has set in. Has been tired since mid Aug. but much more now. She was put on Augmentin this time for 20 days. Eight days after starting it, she ran a fever for 3 days. Went back to the doctor and insisted on blood work. She finally agreed. Determined that our daughter is not a strep carrier and does not have mono. The Dr. said she is too in touch with how her body feels and just needs to be in school everyday. She thinks that stress is making her sick. This is a little girl who loves school, her teacher, has many friends, and is on the honor roll. Even with all of this illness. She has been sent home from school several times for not feeling well. She will completely drain of color after she runs around at recess. Recess is a half hour after lunch so she has recently eaten. Her blood test show high platelet, lymphocyte, and monocyte levels and low MPV levels.Her doctor says its a virus of some sort and just send her to school. I got a full copy of her records and this doctor thinks this is all in our heads. Our daughter continues to run mystery fevers, wakes up with hudge dark circles under her eyes after sleeping for eleven hours. She is dizzy, has a stomach ache, is not as hungry as usual, and has lost some weight. She is over 5 feet tall and weighs only 70 pounds. She has a history of kidney problems and kidney stones. Please help if you can. We are very worried about her. She never complains about being sick or not feeling well until this happened. Even though all of the kidney problems! Thank you! MMEC
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Old 11-08-2002, 12:52 AM   #2
lilrayofhope
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Wow. I'm so sorry to hear about everything your family is going through. Your daughter sounds like a real trouper. I don't really know what could be causing it. She may have an infectious disease of some sort. It could be so so many things. I know how frustrating it must be to see your child suffering and yet you can't releive her pain. You just don't know what's wrong. That's so tough. I think you should get a new doctor. It seems that your doctor is just not being very compasionate, or anything. Not to mention you WANT TO KNOW WHAT'S WRONG. She should be willing to do any/all tests to help ya'll figure it out. Seriously...look into finding a new doctor. It sure can't hurt the situation...only help. Good luck! I hope she gets better.

-Carlie
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Old 11-08-2002, 09:08 AM   #3
NugIsHere
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Join Date: Aug 2002
Posts: 47
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MMEC...

Your post brought tears to my eyes, because it's so firmilur. I'm 17 years old and have been fighting an unexplained illness since January of 99. I've been to over 50 doctors. The 2nd one we went to was a Nuerologist. It was our 1st appointment seeing him, and he ran his neurologist tests on me, after 10 minutes, he sent me out of them room. (I was on crutches at the time cuz i couldnt put any weight on my left leg at all, and bearly on the right). So later that day, I heard my mom talking on the phone saying that the dr said to take my crutches away, that this was all in my head, and i just wanted attention, and that i just didnt want to go to school. I was in 8th grade at the time, so school was my life. Socializing is still my whole life. So, needless to say we never went back to him. Doctors tend to say its all in your head, when either..
A) They dont know whats wrong,
B) They dont want to research it and help you
C) They think just cuz theyre doctors, you'll believe anything they say.
It's 4 years later and I still dont have a diagnosis, and i'm getting worse. It hurt so bad for him to tell my mom what he did. My mom didnt believe it for a second, cause she knows better, but just the thought, kills me inside. My suggestion is to see other doctors, specialist. Maybe an infectious disease dr? Where are you from? If you're near me, I have a good one to refer you to. It's hard being so young, and having these kind of problems, I couldnt even imagine if mine started at 10. You said the dr said that your little girl is "too intouch with how her body feels", I want to see the doctors go through what we have to , and see what they say then. It's unbelievable how insensitive they are when you think they're there to help you. I question myself about my illness all the time, i mean i know its there and i know how bad it is, but not having a diagnosis, is so difficult. If you want to contact me, please email me at LtLnug@aol.com, good luck.

-Nug http://www.healthboards.com/ubb/dizzy.gif
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Old 11-08-2002, 11:12 AM   #4
mlgable
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Join Date: Nov 2000
Location: stoughton WI USA
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You need to change doctors. Any doc that does not take your daughters symtoms seriously from the get go is not someone who should be trusted with her health. Your daughter was sick from the beginning and the doc was not at all concnerned and now feels she has done all she can even though she is still sick and thinks she is faking it. Find a new doc today and make an emergency appointment and get this checked out. If you have time stop by the old docs office before hand and get a copy of her medical records to take to the new doc. Your daughter deserves better medical help than she is getting and it is time to get her that help before this turns out to be more serious. Good Luck.
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Old 11-09-2002, 09:16 AM   #5
Super Sarah
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I just wanted to ask what kind of renal problems your daughter has had in the past? It is just that if she has had renal problems before, then her present illness and her renal problems could be linked. Also, a lot of viruses and other things can also affect the kidneys, so you need to keep a close eye on this. Does she have a good nephrologist so that she can have her renal function checked to see if it is all related?

It could be that your daughter does have Mono and I think that you should get a Mono test done. This can cause sore throats, headaches and stomach aches (swollen messenteric glands in the stomach and swollen glands elsewhere around the body), fever, headaches and lethargy. It can also cause weight loss due to decreased appetite and you can also get stomach ache due to the liver and the spleen becoming involved - the spleen is a lymphoid organ and this would relate with enlarged glands. Mono is caused by Epstein Barr virus and she should probably be tested for this, even if it comes back negative. She is at an age when she could contract this, even though she is possibly a little young.

Even if she tested positive for strep throat, they also need to isolate the antibiotic sensitivity too. The Amoxil and Augmentin may not have cleared this infection if the Strep was not sensitive to it. Also, three rounds of antibiotics will not have done your daughter any favours either and have probably made her feel a whole lot worse, as three rounds of antibiotics in quick succession would have lowered her immunity anyway.

The fact that her white cell count is raised ovbiously means that she has some kind of infection somewhere in her body. Also, the fact that her platelet count is also raised could be indicative of Mono. The red blood cells and other blood components are disposed of and broken down by the spleen and if her spleen is slightly enlarged, then it will not be able to perform this function as well as normal and so the platelet count maybe raised. Other blood disorders can present with a raised platelet count too.

I would suggest that you go and find a new doc and take all the blood results with you and also ask for a Mono/Epstein Barr blood test to get to the bottom of this. Also, ask for blood chemistry tests to check out her renal function at the same time, as the two could be related if she has had renal problems in the past.

Did your previous doc ever examine her stomach when she complained of stomach ache to see if her liver/spleen were enlarged? If the spleen or messenteric glands are enlarged, this can be felt by examining the belly.

Anyway, find a new doc quick. Hope this helps and good luck?


 
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