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Old 04-29-2003, 10:36 PM   #1
Pippin31
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Join Date: Feb 2003
Location: PA
Posts: 387
Exclamation what does this mean???

Hi all,
I have some unusual issues! I have suffered for years with twisting pain on right side. 3 years ago, it hit and never went away. Well, I had a lapro. And the gyn said I had a left cyst, but nothing on the right. She also admitted she had a difficult time getting to the right side. She stated I did not have visible endometriosis, but wanted me to start on Lupron anyway. Before this I had a colonoscopy that diagnosed me with Irritable bowel syndrom. That doc. Put me on meds for it, but never solved the twisting pain. She was the one that said I need a lapro. Because there was something else going on. This is important to the story.
Anyway, I went to a Reproductive endroconologist who felt it was endo. As well and wanted me to start on Lupron. The pain was everyday, but worsened with my periods. Once I started the Lupron, 2 weeks later the twisting pain was gone!! Then it started to come back every other month. He did blood work and found that my hormone levels were not low enough and started giving me 1 ½ shots per month. I did the 6 month treatment. Once the Lupron wore off (about 4 weeks later) the pain came back with a vengeance along with a 72 day period. I was put back on Lupron for almost 2 years. He wanted to do a lapro within that time, but I refused because the first lapro. Caused a back injury being over extended in the stirrups. Now.....I finally agreed to the Lapro because he said he couldn’t continue Lupron therapy because it was already too long. I had the operation Friday. Well......NO ENDOMETRIOSIS!!! He said my pelvis was clean. He did however find what he referred to as an “angry bowl” on the right side. He said it didn’t look right at all, very inflamed and grey. He didn’t have any answers about it because he said he isn’t a bowel man. It’s only been a few days since surgery and I have a follow up with him Friday. My parents said he was absolutely amazed it wasn’t endometriosis because the Lupron helped the twisting pain. I asked him a time or two as well, before surgery, if it could be anything else that Lupron would help and he said NO. My question (finally) is has anyone ever heard of Lurpon helping anything other than endometriosis? Why would it have helped with the pain for the intestine? Why did the pain get worse with my period or right before I would spot (literally I would spot and the very next day the twisting pain would hit, this while on Lupron) Lastly, has anyone ever experienced a similar situation? Any help would be greatly appreciated, for this has been a 3 year battle trying to find a diagnosis! Now that I have one, the Dr. Doesn’t know why the Lupron helped!
Thanks
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