Hi tmm. So sorry for your troubles. If I remember correctly, didn't you say you were at Stage IV dysplasia with your esophagus? As far as surgery, I was diagnosed with Barrett's esophagus (Stage 0) in 1999 and doc recommended surgery then. However, I wasn't ready for surgery and wanted to continue on medication (I was Prilosec - went from 20 mg to 40 mg daily). He said that was fine but if my dysplasia worsened (I was to have EGD done annually) he would schedule me for surgery immediately. After 2 years, I decided to have the surgery; fortunately my Barrett's had not worsened, but I found out my LES was hypotonic and no amount of med was going to change that. So I had the Nissan fundoplication done in June '01.
So basically, the choice was up to me. If surgery is recommended for you, please consider it. But weigh the pros/cons first - will it truly help you with the esophageal problems you have? Or is the damage too much? Are you thinking of fundoplication? Or would the doctors have to remove part of the esophagus due to the progression of your dysplasia?
I'm praying for you - please keep me posted on your decision. Do a lot of research before opting for any surgery. That's another reason I waited 2 years after it was recommended - I needed to fully research the benefits of the surgery, as well as the less than desirable outcomes, so that the final choice became mine.
Wishing you well,
Katie G
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