Hugs Amber.
It's possible it could be in your back. My test in that first year was, is this pain in another part of my body just going on and on. I waited 2 months and when it was still hurting just like the left leg, I knew it had spread there. It started for me in my left knee/lower leg, going up into the thigh and hip before going into the right foot and shooting up from there. I think it took about a week or maybe just a bit more before I realized that foot and leg was feeling as cold as my left. By 11 months it was in my arms but it was just the pain. It took like a year and a half or so before I saw any color changes or any temp change in my hands. When I asked a friend about it she told me that it can spread without the temp or color changes right away cause it happened to her. Anyway, it's been over 2 months since your surgery and with your back still hurting I would tend to lean toward it might be in your back. Someone I knew who got an SCS last year her back hurt for 2 or 3 weeks after surgery then had to have another surgery because of infection and lead replacement then another 2 or 3 weeks from that but it did stop hurting her. Your surgery site has long since healed so it shouldn't still be hurting. I don't think it's normal at all. From all the problems you're having as well it may be better for you to have it taken out completely. No use in having it if it's not going to help you all and take your pain down. I wish you weren't having to go through this at all. Talk to your doctor and then make the best decision for you now and in the long run. You know what's best, no one else does and don't let anyone talk you into doing what you don't want to do. I'll be thinking of you and waiting to hear how things go.
Hugs
Karen
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