Neuroapthy from Taxol??

[Daisy12]

I recvd the chemo drug taxol for breast cancer 4 yrs. ago. The neuropathy got so bad they cut back the dosage. The neuropathy is steadily worsening. My feet fell like I'm wearing a shoe that is 3 sizes too small and both feet and right hand continually feel asleep and like pins are being pushed all over. They started with neurontin which I couldn't take due to it keeping me in a stupor. I am now taking elavil and lortab. My question is this. Does anyone have taxol related neuropathy and if so does it steadily worsen? I would just think since I've been off the taxol for 4 yrs. that it would have gotten better not worse!!
I see my Gp tomorrow and I'm having to ask for something stronger to manage the pain when the lortab isn't helping.
Any info on taxol related neuroapthy would be greatly appreciated.
Thanks

[dahlek]

Chemo can and does cause or aggravate existing neuropathy issues. It's not uncommon at all. I suggest that you 'web' up 'chemotherapy+neuropathy' you should find some resources and research on the problem.. That's not helping you now tho...
Most cancer patients I know of who have neuropathies do check in on a regular basis with a neurologist who is familiar with neuropathies...The easiest way to find those who specialize is to check out 'neuropathy+physicians' on the 'web' and find out what is out there.....Ask your GP for a few names as well...It certainly can't hurt to ask! Who knows? You mite just find a good neuro and the right combination of pain easing meds to make life a bit better!

[cjammom]

i am also a 4yr survivor..i had taxotere..i am wondering if you presently take an AI (aromastose inhibitor)..such as arimidex,aromasin or femara..
i am having the same problems..just got diagnosed with carpal tunnel..its very painful. i am off my aromasin right now for a break the side effects make me feel like i am 90!
i have just been to a rheumatologist who put me on cymbalta and celebrex. It seems to be doing the trick..i had tried neurontin but i was walking into the walls!
take care..write back if you can

[Oneita]

I am a 27 months survior of breast cancer. I too Have Neuropathy of my feet from the Taxol. I went for over 2 years trying to deal with this. I finally talk to my doctor and she told me to try Lyrica. Started out with once a day. And then I tried 1pill twice aday. Could not really tell the different with taking 2. Went back to once a day. It has given my life back to me. If I plan on being on my feet alot then I will take one in morning and then one at night. It would be worth a try. Keep me posted please.

[Toolmanjim]

I had a mild case of Neuropathy prior to having the Taxol administered. The Chemo seemed to kick the Neuropathy into high gear. I now have 2 blocks of wood for feet, numb calves and knees, and pins and needles in my hands. My Doc prescribed Neurontin (200 mg 3X daily) which helps some with the pain, but not with the numbness or pins and needles feeling. I've seen Neurologists and taken the tests, but they have not helped it either. It's only been 1 year since I had the last Taxol, and the Neuropathy only seems to be worsening. I don't know if this is any help to you, but hopefully your pain will lessen naturally.

Jim