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Old 01-31-2007, 10:39 PM   #1
plyons53
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Join Date: Jan 2007
Location: Miami, fl, usa
Posts: 1
many symptoms and no diagnosis

My wife before Christmas started having an issue with sleeplessness and chalked it up to perimenopause. Then her urination started to increase. On 1/2 I took her to the out patient clinic because she had blood in her urine. They said UTI and gave her a antibiotic. On 1/5 I had her in the ER because her urination had increase to 2-3 times per hour, she was acky and still not sleeping. They gave her another antibiotic and fluids for dehydration. The next day we went back and started over again, but this time they did an ultrasound and sonogram of the pelvic area, and more IV. Monday I got her admitted for two days and they did MRI of brain and again more test. Still going 2-3 times an hour but they couldn't find anything wrong so they discharged her on 1/10.
Went to a Urologist the following Monday and he did a cystoscopy and told her to try an elimination diet that she had Intersisticial Cystitis. The IC support group suggested she go to another doctor which she did on Monday and he reviewed the files from the hospital and did an exam and told her she didn't have IC and to quit the diet. She is down to 100 lbs. His exam showed she has a very painful uterus but the prior test show nothing and he can't explain it. She has continual pain radiating to the back which he said can be the uterus, but now the pain has migrated to the stomach as well. Ambien CR 12.5mg gives her about 2 hours sleep and that's it for the night. She says she gets a feeling that something is taking over her body or poisoning it.
So we have insomnia, frequent urination, tender uterus, stomach and back pains, and a feeling the body is being taken over.
Anybody got any clue to what might be going on?
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Old 02-01-2007, 08:55 AM   #2
DX-
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Join Date: May 2005
Location: Upstate New York
Posts: 200
Re: many symptoms and no diagnosis

Plyons,

It sounds like you've done a pretty thorough review with a urologist -- but way too often specialists in one body system don't diagnose well when there is a problem with another body system.

From your description, her problem could be endocrine related (lymph and hormone systems) or gynocology related -- and at the very least, they would know to run tests that a urologist wouldn't necessarily think to run.

Also -- and I don't know why I think this -- but is it possible she has an allergy to something or is being exposed to something that is poison to her? I'm not sure who her first doctor was -- but if you haven't taken her to an internist, that's a good idea, too.

Good luck to you....
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Old 02-01-2007, 02:27 PM   #3
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Re: many symptoms and no diagnosis

They did an MRI of brain, but not of the pelvic area? I would make sure that an MRI or CT is done on the kidney/bladder/urine system, and female organs, too.

Let us know if you find anything out.
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