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Old 04-14-2007, 05:17 PM   #1
jamesm45
Newbie
(male)
 
Join Date: Apr 2007
Location: Ada, Minnesota USA
Posts: 1
lost

How can one get over the loss of a person you have been inseperable from for the past 23 years. We just celebrated my wifes 45 birthday and now we found out that she was diagnosed with 4th stage lung cancer and it is spreading fast into her lympnods. I feel so lost, sad, mad, I feel like throwing up all the time, all around just down right empty. I know thousands of people go through this, and now I am one of them. This lady has been the love of my life and inspiration and backbone. How do I cope? I have lost many people to "this nasty disease". My wife has smoked for many years, but the doctors said that not just smokers get lung cancer. But it does contribute to the health. I have sat back and thought and thought about how many societies and memberships are out there, asking for donations, support, etc. But the one thing that goes through my mind, is if these "damn cigarettes", excuse my language, but I am mad, are so bad and are filled with so many posions, as strong and powerful as our government is, why do they keep them legal? Is it all about the money? Is it that our country doesn't give a crap about us? If it were illegal, would there be alot of pharmaceuticals and doctors that would go out of business? I am so sorry for the rambling, but I am so lost and scared right now. I thank the higher being for letting me have a wonderful son to lean on at this time, but as with him, he is just as lost and confussed. Stay well everyone and love each other everyday as if it were your last.

Last edited by moderator2; 04-14-2007 at 05:21 PM. Reason: posted contact info
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Old 04-14-2007, 07:20 PM   #2
ebrena
Senior Member
(female)
 
Join Date: Feb 2007
Location: Victoria BC Canada
Posts: 290
Re: lost

Jamesm45, your feelings of anger at this time is so understandable to people facing this terrible news. You never "just" get over the loss of someone who is so special to you and who has been your soul and inspiration for 23 years. This is the scariest transition to face and come to terms with. I lost my mom to stage 4 small cell lung cancer that metastisized to her brain (which is how we found out) Dec 2005. We were so close she was my rock. I am so lost without her there isn't a day she doesn't come to my mind, I miss her so much. In fact I started missing her the day we found out. At first I was numb and then I was scared, then I was mad, I wished my ears never heard the news I just wanted to rewind our lives to a better time. I was angry at her, the Dr's, the cigarettes, the whole thing made me mad. I was so scared and couldn't grasp the situation on my own so I went to the book store and loaded up on every book I could find on losing a loved one as well books on what your dying loved one wants from us. I had to because people around me didn't want to talk about it, the Dr's brushed it off but I needed to know things. I bought books on helping dying loved ones as well books on how the patients family can gain coping skills I found some very honest and helpful books to guide me down the path to accept the news as best I could considering I had no control of the situation. I had to accept what the outcome would be I also wanted to understand the needs of my mom as she was very scared. It was difficult for me to accept that she smoked until the day she died but it was her support.. it is terrible the hold these little white tubes of death have on a person but they do and the government knows it, they ban smoking in public places and make it difficult for the smoker to smoke but it is the revenue it brings in that keeps them from totally banning the production and sales of them. The amount of money smoker's invest to government and tobaco companies you would think if they really cared about the health of humanity the money would not even be a thought, they would just suck up the loss and allow people their health. They don't care. Then they rant and rave about health cost's and they cut out health care and they are the suppliers of the disease. They may as well go into the illegal drug industry too it's just as lethal and a huge profit maker. I'm sorry but I too am very angry. When I lost my mom my best friend a huge part of my person went with her, I am not the same easy going, happy person I was when I had her to laugh with and to talk to. James words are difficult and it's hard to accept comfort from other's when you are hurting, but I really feel in my heart the sorrow for your family. Your special lady needs her family now for love, inspiration and support- love every minute you have together and hold her close to your heart. Also you and your son need each other, you have a tough road ahead and keep yourselves well for each other too. Being a care-giver is an exhausting job emotionally as well physically so don't spread yourself thin, ask for help when you need it, although I found I was very possessive with my mom, I really didn't want any relief from her even if I did, I never had any offer's. This is a good site for you for support james everyone here cares deeply for you and your family.
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Old 04-15-2007, 08:59 AM   #3
Janmarie2
Senior Veteran
(female)
 
Join Date: Mar 2005
Location: Santa Barbara, California
Posts: 610
Re: lost

You can be mad at the smokers and the makers of cigarettes and wish they were illegal, but they probably never will be. The money in that industry is just too huge. My mom died of lung cancer and she never smoked a day in her life which makes you question was it second hand smoke? Was it radon?Was it air pollution? We will never know.

How do you get over the loss? You really don't as it becomes a part of you. For many of us we grieved as the illness progressed by the time death did arrive it was what may sound very odd to you right now a relief.When my mom was battling NCSLC stage IV I expected to be totally shattered when she did die but found that instead a sense of relief washed over me. One of my sister's and I went walking the next morning and talked about how weird it was that we felt this way and that life just goes on. I miss my mom more then I can say but find comfort by focusing not on what I lost but rather on what I had. I had the best mom in the world and I had a fantastic relationship with her. To me it would be much sadder to have never had that then to have had it and lost it. I know so many people that did not have a good relationship with their mothers so I know I was blessed.

Her 2 1/2 year battle was a roller coaster ride at times and at first I was consumed by the fact the doctor told her he could only offer her pallitive treatment not a cure. My mom saw that as a challenge so she fought hard but 4th line chemo took its toll and she decided to quit.

I survived by telling myself that Ok she has cancer that will kill her, However; she is really not on a different playing field then me or anyone else as not one of us knows when we will die.You or I could die in the next few minutes form many things, a stroke, a heart attack, get hit by a car the list goes on and on. My mom could have died from any of those things too at any given moment .We do think she died from a pulmonary embolism..blood clot to her lung as she did not die from liver failure. By the time she stopped chemo she no longer had active cancer in her lung as for over 1 1/2 years we had just been battling the mets to her liver . Tarceva wiped out the lung tumor and it never came back. Anyway I learned to see she was no different then any of us except that she had been handed a calling card saying death is coming and that inturn allowed us to say good bye and to live each moment as if it were the last. You find things that are not important really do not matter and suddenly you do have time for the things that do matter. So many people have sudden unexpected deaths and never get to say good bye and their loved ones wander around thinking what was the last thing I said to my beloved? Did they know I loved them? Had I said it recently? Well thanks to the "calling card" called lung cancer I know my mom knows how everyone she cared about felt about her, I know what the last thing I said to her was. She got to die at home with all of us around her which sure beats dieing in a hospital.Maybe that is part of what is behind that sense of relief along with knowing she will never have any pain or suffering again.

We will all die just as we were all born and as hard as that is to accept it is one of the few truths about life. I believe we are spiritual beings having a human experience so in a way my mom did not die she just transitioned to her next experience. This means that for me despite missing her and feeling down at times that life goes on and that yes I laugh and have good times as I am still in my human experience. Someday we will be together again.

My dad was married to my mom for 56 years. He is lost without her but he is getting by, overwhelmed by all he now has to do that she use to do.I had never had a good relationship with him as he was a workaholic that did not take time to spend with me and my siblings so I prayed that he would not out live my mom but he did and now I see that maybe there was a reason for that. I think it happened this way so that we all would be forced to get to know him and see that he really is not a bad guy. He just made some poor choices which is something we all have done at one time or another. I feel so different about him now.

The best advive I can offer you and others that are new to this is listen to that inner voice and if you feel something is wrong do not let the doctors dismiss it. After her first line chemo my mom had no energy and was running a low grade fever. I mentioned this to her oncologist who wanted to write it off to the cancer but my inner voice was saying no she has either a pneumonia or UTI ( urinary tract infection). We had to battle him for tests and she actually had both! The pneumonia was so bad she had a total white out of her one lung.It was an obstructive pneumonia cased by the tumor and that was when she was started on Iressa ( next month changed to Tarceva which had just come on the market) and that changed her whole experience with lung cancer as it destroyed the lung tumor. Anyway had I let the doctor dismiss the fatigue and fever my mom probably would have quickly become septic and died and would have become one of those 6 month stastics instead she survived about 2 1/2years. Be your wife's advocate and stand up to the doctors and question them when you feel it is necessary as they are not going to watch out for your wife like you are. Spend lots of time with her and make sure she knows how much she is loved and appreciated. Leave no regrets. I am at work and had better get back to work. Know I will add you and your wife and many other newbies here to my prayers. JanMarie
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Old 04-15-2007, 05:56 PM   #4
wendy 39
Junior Member
(female)
 
Join Date: Apr 2007
Location: UK
Posts: 15
Re: lost

Hi James...i feel so much for you...you need to express your feelings..and i find this board helps me...although i have only recently joined ...i found out also about amonth ago..my Husband of 44 has stage 3b lung cancer...he smoked for about 25 years much to my annoyance...his father died of lung cancer 2.5 years ago..he had smoked all his life...since then my husband has not smoked 1 cigarette...in the last 6 months he has had a tumour growing inside him...since he packed it in he got lung cancer ...why?? I feel just like you james ..sick ..sad ..angry ...my heart is very heavy..what can we do...my hubby has just finishes first cycle of chemotherapy...Gezmas and cisplatin...his side affects are not to bad as yet..and hes eating well...i too have a lovley son of 16 whos struggling with his emotions too...they cry..then you wanna cry...it is so hard....i dont think we are going to have normality again..and the fatigue we feel ...it wears you down ..some days i find myself lying in bed crying ..trying to get my head around this...i think we have to take a few deep breaths James and be strong..possitive mental attitude....helps im sure...please god ..make it.ok....i know what your feeling and going through James...take care and try and be strong..
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Old 04-16-2007, 02:27 AM   #5
Kimslos
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(female)
 
Join Date: Aug 2005
Location: Irvine, CA
Posts: 616
Re: lost

James,
It breaks my heart when I read of yet another person being diagnosed with this disease!
You have my thoughts, prayers and please if you can stay positive for your wife it will do her wonders and always have faith!
Kim
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