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Old 07-08-2007, 10:30 AM   #1
zorm
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Stomach Advice

Hi John You Seem Very Knowledgable Are Ayou A Doctor Or Patient. This Prof You Keep Going On About At Kings College What Do They Deal In I Have An Appointment At Kings College Hospital In London On Friday Im On Erythromycin Right Now But Feel Not Mush Better For This Chest Infection. I Feel Infected Evywhere. I Was Negative For Hla B27 I Think But My Bone Scan Showed Sacriolitis And Sponyilitis. I Feel Quite Confused Right Now Yes My Eyes Aren't Good No Doctor Wants To Know. Im On Asacol Not Sulfasalazine Do You Think My Symptons Are Related To Chrons Or Perhaps Celiacs?
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Old 07-08-2007, 04:00 PM   #2
JohnM22
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Re: John M22 And Stomach Advice

Hi, ZOE:

I'm an EX-patient; the doctors did more damage than good. I have AS, which begins as bowel problems, but most people with AS remain asymptomatic with these for many years into their disease: I never would have believed that my disease was triggered by LGS or even that it was a form of arthritis (it just hurt too much).

I don't know which days Ebringer has office time at Kings College, he is now 'emeritus' status, but is always willing to help patients sort out what they have, with his advanced tools. He could refer you to his colleagues there, perhaps: Taha Rashid, Clyde Wilson, Teresa Ptaszynska, and Mark Fielder in the Division of Life Sciences, Infection and Immunity Group, Waterloo Campus, King’s College London, UK. Beyond that, I have Ebringer's contact information, but cannot give this out on this forum and we are also restricted from direct contact due to these policies, but you should be able to find out from what I have given.

If you are experiencing arthritic symptoms subsequent to bowel problems, there is a near-certainty that one or more of the over 20 identified as arthritogenic bacteria, fungi, and other bugs is causing the problem. You should first work to heal your gut, but also eliminate or reduce the specific species involved. Sometimes, these two goals cannot so easily be achieved, since things that repair the tract (yoghurt with live active cultures, vitD, vitC, niacin, vitE, glycine, lysine, okra, lychee fruit, colostrum, and GLAs). Some of these can aggravate the arthritis, like yoghurt, so this should be taken in limited amounts at first. These bugs can be like Dragon's teeth and it is important to find a good Slayer, along with starting the NSD (No Starch Diet) to Kick out the offending bugs.

Fasting helped me when NSAIDs nearly destroyed my tract, starting with my stomach right to the diverticuli--everything was involved with some sort of --itis and I fasted a total of 17 days, water-only. Not even one recurrence of ulcers in almost 20 years since, and only a slight flare-up (cryptitis) after eating contaminated food (contaminated with starch that I did not first test with iodine).

The people at Kings College are very good, and I hope that you can find relief soon, by whatever method you decide upon.

Cheerio,
John
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Old 07-08-2007, 04:10 PM   #3
JohnM22
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Re: John M22 And Stomach Advice

Sorry--

If you are REALLY B27 negative, it is probably Crohn's, and with the severe advancing arthritis, probably not celaic/sprue, but you can be tested for this more easily (there are 3 agents they look for in serum; a biopsy should not be required). In EITHER case the NSD should be initiated immediately.

Health to You,
John
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Old 07-08-2007, 04:42 PM   #4
zorm
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Re: John M22 And Stomach Advice

Quote:
Originally Posted by JohnM22 View Post
Sorry--

If you are REALLY B27 negative, it is probably Crohn's, and with the severe advancing arthritis, probably not celaic/sprue, but you can be tested for this more easily (there are 3 agents they look for in serum; a biopsy should not be required). In EITHER case the NSD should be initiated immediately.

Health to You,
John
hi john i think i am hlla b27 negative but who knows the nsads seem to rip by guts to shreds and so do most of the antibiotics i tried. the doctors have truly messed me up try this try that without proper supervision or listening to me
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Old 07-08-2007, 04:45 PM   #5
zorm
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Re: John M22 And Stomach Advice

what do they look for in serum??
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