New and alone....

[LisaN]

Hello all. I was diagnosed with FM 3 months ago. I am not sure how long I have had it, but I have experienced many of the symptoms since High School. I feel very alone right now. I know of nobody I can talk to who understands, except my mom who also has FM. But she always seems to ignore it half of the time and drown it away with pain killers the other half. I have to little girls (ages 2 yrs and 11 months) and a great husband. It's just that my girls are to young to understand why mommy can't give them horsie rides or spin them around like there daddy does. And my husband (bless his heart) just plain doesn't undertand. He tries, but he just CAN'T! Sorry I've written so long, I'll stop for now. Thanks for just listening.

OH! And if anyone knows any good doctors in the Utah Valley or even Salt Lake Valley areas, I'm looking for one. Thanks again!

LisaN

[korken]

Hello Lisa, Your husband needs to read the boards, also have you done research on the internet? If not, do so and print it so he may read when the kids are asleep. My husband also has fms and much more. There are doctor list for the us on FMS. It took me a long time to find them. Not your normal hospital groups, just what we have doctors. I got my new one on the net. He's great! He's a Board certified Infectious diesease, cfs and fms doctor. I got him off of the co-care, good doctors list. But I don't remember where I found it. Good luck and write when you want, and as much as you'd like there is no limit. Good Luck and take care, Kim Check out other board topics that relate to you! Good hunting.

[Scooby]

Hi Welcome to the board
Finding a doctor that specializes in this is very frustrating. Every time I find one I run into insurance problems. I have learned so much just from writing and reading on this site. Hope we can help you ....

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~Luv, Scoobs~

[Elaine from Kentucky]

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[This message has been edited by Elaine from Kentucky (edited 01-24-2001).]

[Linda D]

Hello Lisa! FM can be a lonely thing. Not very many people can even imagine what it's like, and when you try to explain it they look at you like "Well you look fine to me!"You are lucky to have an understanding husband. I've been married to mine for 14 years, and try as he may, he still doesn't get it. He does help alot around the house, and always has. But he still has no clue of how I feel. My children are older, and they have a hard time grasping the concept. I have read everything I could on this FM syndrome, and each time I read something, I realize, if I didn't have it, I couldn't believe it either. There's just so much going on, so darn many different, seemingly unrelated symptoms, and yet you don't look sick! I have found, on this board, a real nice group of people who do understand, and are willing to cry with you or laugh with you, or help you with anything you may be wondering about. Just coming here and typing out my feelings really helps so much. There are only a few of us who post here on a regular basis, but you won't find a better group anywhere else. Welcome! There's always room for one more! Lots-o-Luv...Linda D