got sick 3 years ago, and has taken that long to be diagnosed. been unable to work since getting sick. a year ago had to give up my apartment and move in with a friend. most don't understand what's going on, hard to explain especially if they don't see first hand when having attacks. know a lot about depression, am on welbutrin and see a psychologist once a week. helps to talk to an impartial person. been through a ton of tests, including a spinal tap, most of which have come back negative. took all those tests, plus a rheumatologist who has done research in myositis to get diagnosed. would suggest that you look for a rheumatologist, preferably one who has a background in myositis. keep looking until you find a doctor who knows what he is doing. because it took so long to get diagnosed and treated, my lungs and heart have been effected. see not only the psych, but a primary care physician, rheumatologist, ENT, cardiologist, and a neurologist. the last two mostly just monitor. have been through a lot of the medications, none of which have worked. now doctor is suggesting infusions (iv drugs). big step, all the side effects. these drugs are so toxic, depressing the immune system. still don't know if i am going to start the infusions. still researching. don't just accept one doctors opinion, make sure you are getting the best treatment possible. good luck, feel better.
Re: feeling alone with DM
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