I have had a neurolgical problem for just over 5yrs. Still undiagnosed. My symptoms come and go. I have never written on PD site before, never felt I had to. However, to explain, in two weeks time I am going to see a specialist regarding Lymes Disease. It is a possibility but with neurology nothing is certain. My reason for writing here is this. I have gradually become alot worse, instead of my symptoms coming and going, they are not going. My legs are becoming weaker. I would shuffle along now and then before, now its every day. I get up from sitting down and shuffle to the kitchen, the more I walk the more dizzy I become. I have a dog and walking him is now becoming very difficult. I got halfway yesterday and couldnt go any further. After a few yards my walking slowed down, my brain felt like it slowed down, I felt as though I was going to fall down and im finding this frightning.I get this sort of brain fog and my surroundings dont seem real. Its SO hard to describe, but I have to concentrate 100 times harder on walking, keeping my balance than normal. I get tremors, tonite when I was eating my dinner it was not hard, but more annoying. I have had various tests, ie: Spinal tap, that came back positive for oligoclonal bands, but its not MS cause the bands are in the blood aswel. My MRI has numerous white spots now and down my spinal cord. My back hurts alot, as do my arms, wrists and left knee joint. My posture is so stooped now aswell. My handwriting is ok, though not pretty to look at, very spidery and I cant write for long as my wrist hurts. Iv never experianced the freezing symptom. Sometimes when I go to walk I just stop dead as I feel like Im gonna fall, its not a concious thing it just happens. Its because of the shuffling and problems walking that I am writing. I am certainly not trying to self diagnose, just a bit concerned. Any help or advice would be greatly appreciated.
Im shuffling along.....
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