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Old 10-11-2003, 02:31 PM   #1
spirlhelix
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Post Pulmonary Hypertension

My internist mentioned after my echocardiogram that I have pulmonary hypertension. He didn't seem to know much about it.

Help! Does anyone know any resources, or have any experience with this?


Hugs,

Pam
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Old 10-11-2003, 06:13 PM   #2
zuzu8
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Pam- I don't have personal experience with this but know that recently great strides have been made to control pulmonary hypertension, particularly with calcium channel blockers and other drugs, depending on staging etc.
Here is an informative link (thru MEDLINE website). Permission to post from Medline has been approved by moderators. [url="http://www.nhlbi.nih.gov/health/public/lung/other/pph_doc.htm"]http://www.nhlbi.nih.gov/health/public/lung/other/pph_doc.htm[/url]

zuzu xxx
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Old 10-12-2003, 07:29 AM   #3
spirlhelix
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Thanks, zuzu

From what I can find (there isn't a whole lot out there), you can either have primary or secondary pulmonary hypertension. There is a strong possibility I have secondary, (caused by an other identifiable condition) which is good--as long as they can treat the underlying cause of pulmonary hypertension.

Ever since I got my echocardiogram, ever more tests are on the horizon. . .probably because they found I have heart failure with an ejection fraction of 20%.

I suggested to the doctor that we look for sleep apnea, which can cause both heart failure and pulmonary hypertension (I knew about the first, and that's when he told me I have pulmonary hypertension!). "Oh, sleep apnea can cause pulmonary hypertension--that's what you have!". Geez, I wonder if he would have mentioned it to me if I hadn't stumbled onto it.

People with sleep apnea who have heart failure often have central sleep apnea (usually with a neurological cause)--not the same as obstructive sleep apnea. Or they can have obstructive sleep apnea, or both.

Sleep apnea is a significant cause of hypertension. There are interruptions in the breathing pattern while the person sleeps. It makes us wake up at night suddenly with a feeling of dread or a "flight or fight" response. It is very hard on the heart, as the body is flooded with adrenaline up to 100 times an hour with each cessation of breathing.

I would encourage anyone who has "rough wakenings" during the night and high blood pressure to ask your doctor about a sleep study.

Hugs,

Pam

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Old 10-22-2003, 07:13 PM   #4
spirlhelix
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Well, I saw a cardiologist for the first time. Here's what he found from my echocardiogram:

Severe left ventricular dysfunction
Mitral regurgitation
Severe heart failure
Pulmonary hypertension
Right ventricular dysfunction

and a few other things. He told me I have a 50% chance of dropping dead in the next year. One of the things that makes me a difficult case is that I can't tolerate the meds that are the usual mainstays of treatment. He plans to refer me to someone who does more experimental treatments. He suggested I might be eligible for a heart transplant.

I'm going in Friday for a cardiac catheterization.

Wish me luck!

Pam
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Old 10-23-2003, 08:18 AM   #5
zip2play
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Oh Jesus Pam,

So sorry to hear that dismal diagnosis.
Make sure you stay under the care of the best cardiologist in your area.
Excercise tight control on BP, cholesterol, stress, no smoking and any other risk factors you can find and NEVER forget your daily ASPIRIN.

Did he mention any surgical intervention SHORT of transplantation that might be useful?

[This message has been edited by zip2play (edited 10-23-2003).]
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