POTS Syndrome

bigstan · 01-17-2008, 10:16 PM

Hi everyone, I've been diagnosed with POTS or Postural Orthostatic Tachycardia Syndrome. Rapid hear rate upon standing. An autonomic disorder. I'm 41 and always been a fitness freak. Been sick for the last two years. I was diagnosed with Lyme disease. I am being treated with antibiotics for Lyme through IV picc line. I guess the Lyme has caused the POTS.

Does anyone know what type of doctor treats autonomic disorders? Or if there is treatment for POTS

Mergie3363 · 02-29-2008, 02:23 PM

Quote:

Originally Posted by bigstan

Hi everyone, I've been diagnosed with POTS or Postural Orthostatic Tachycardia Syndrome. Rapid hear rate upon standing. An autonomic disorder. I'm 41 and always been a fitness freak. Been sick for the last two years. I was diagnosed with Lyme disease. I am being treated with antibiotics for Lyme through IV picc line. I guess the Lyme has caused the POTS.

Does anyone know what type of doctor treats autonomic disorders? Or if there is treatment for POTS

I also have POTS. I am very sorry. There are dr. If you look up the disease you can find a nuerologist in your area. I live in Ohio and go to Dr. Chelimski. It is a hard disease to have. There is no cure and the symtoms vary daily. Your lyme disease probably caused the POTS, but now you must just learn to live with it. There are meds to help if you get them right. It may take awhile. I hope this helps. I also hope you are feeling better.

tanamodessi · 03-04-2008, 11:45 PM

I just ran across your post. My daughter has recently been diagnosed with orthostatic intolerance ---automonic dysfunction -- she sees a cardiologist.

mmee · 03-05-2008, 03:00 PM

Hi, I have read your posts of POTS and this sounds like me. What are all of the symptoms of this syndrome? I have been trying to figure out what has been going on with my heart since Feb 2007. I also have hypoadrenalism and myofascial pain as well as some other illnesses, but this rapid heart rate just came out of the blue. It came one day and really has not left since. I am going to be fitted for another holter monitor next week.
Thanks.

Mergie3363 · 05-19-2008, 08:20 PM

All of your other problems are related to POTS. To know if you have POTS you must have a tilt test. There are not many places that offer them. you can go online and find one closests to you. They have one in Cleveland. Hope this helps. You can look up POTS online.