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Old 01-12-2003, 10:40 AM   #1
Donna40
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Join Date: Jan 2003
Location: ronkonkoma
Posts: 6
Post diagnosis

Hi ,
I have been sick awhile and fed up.
I am a bit confused i have been getting headaches and migraines daily for a while now. I also get like head rushes of lighheadness, heavy feeling get visual disturbance hard to explain went to a nero and I had a eeg slightly abnormal then went for a mri they say they are ruling it as atypical migraines with some white matter found and rule out lyme,lupus which was done.i have come up with positive anticardiolipin syndrome without ever having clotswent to a rheumataologist she sent me to hematologist which will do nothing cause i never had a clot before then neuro sent me to local hospital to see another neurologist who kinda specializes in seizures took another eeg she stated it shows seizures but i never had 1 cause of this they will not rule it as epilisy but wants me to take topamax which i am skeptical on also just been diagnosed with sinusitis but waiting to get the proper antibiotics from doc on monday. Could this be a form of seizure? I am not a pill person.I am scared cause coming back positive on everything but not getting what i am positive on like clots, & seizures
I dont want to just sit back I think there is more to do but dont know what and is this all related?
i am actually also going for to a sleep apnea center tomorrow and then second half of test in feb dont know where to go or what to do
amy help or advice would be great
thanks donna
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Old 01-12-2003, 12:44 PM   #2
littlesheep1999
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nero knows best, take their advice take meds if you want to get better.. and i am sure if it was really bad you would know by now.

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donna

 
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