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Old 04-07-2008, 03:56 AM   #1
VioletRose89
Junior Member
(female)
 
Join Date: Apr 2008
Location: California
Posts: 11
Unhappy Inattentive disorder

I am looking for some input here. My son - now 17 - was born a preemie. He was born 10 weeks early, had a lot of problems in the beginning but basically turned out fine. His doctors told me that I may not see what effects the prematurity had on him until he gets older. Well now, I am not sure if I am seeing the effects of his prematurity or if he has Inattentive ADD.

I looked up ADHD and saw the inattentive disorder - and there were 9 signs. He fit 8 of them in my opinion. I have fought with the schools and doctors trying to figure out what was wrong. I even took him to a therapist - nothing has helped! They have suggested that it is defiant opposite something, I cannot remember the actual name. I think it is because he has taken an "I don't care" attitude. Then I found the ADHD site and did a little research on that.

I honestly think he has this inattentive situation. He sleeps a LOT, is confused easily, cannot focus on things, gets sidetracked easy - the list goes on... but he is NOT hyper - far from it actually.

I finally took him to a doctor and asked to have him tested and they had me fill out a form that they will review. I hope that they will see what I am talking about finally.

What do they do to test for this? Does anyone have any opinions or suggestions? I am at a loss. I have fought for so long trying to figure out what the problems is - I feel like I am a terrible mom at this point!
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Old 04-07-2008, 07:35 AM   #2
addprogrammer
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Join Date: Mar 2005
Posts: 896
Re: Inattentive disorder

VioletRose,

I thought the ADHD dark ages ended about 15 years ago. Guess not. I'm surprised your schools and their doctors haven't tried exorcism on your boy or have they?

You boy is so obviously ADD, that is, ADHD primarily inattentive subtype. And you are even more obviously a very good mother. Keep beating on doctors doors until you get the medical help your boy needs. His type of ADHD responds very well to meds and therapy.

It is possible he is also depressed. Who wouldn't be after what he's been through? Do not allow depression to be treated as if it is the primary disorder. He'll just get worse.

As far as ODD (Oppositional Defiant Disorder), how many cars has he stolen? How many houses has he broken into? How many times has he been arrested? By age 17 his rap sheet should be a long one. Don't tell me if the answer is ZERO because I'll "catch" ODD and want to harm those bozos.

I've seen your situation repeated over and over so many times and it always bottoms out the same: The medical doctors who should know, don't. Those of us that EXPERIENCE ADHD (especially primarily inattentive) do. Your problem boils down to finding one of the few good psychiatric doctors in your area that "knows" and can help medically.

Another poster said the good doctors are in high demand and have long waiting lists. So true. So true that it is a good indicator of good doctor.

Bob

PS Thunor - Get in here and do your thing. VioletRose, this PS is to another poster that has been through the <vilecurseword> doctor thing.
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Old 04-07-2008, 01:57 PM   #3
Thunor
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Join Date: Feb 2008
Location: Canada
Posts: 241
Re: Inattentive disorder

Ugh, doctors!

Yes, I know the pain of crappy doctors and mental health 'professionals.' All I can say is see it through and don't let them force you to accept a diagnosis that doesn't logically fit; you know your son's symptoms, if the diagnosis doesn't account for them or has a lot more symptoms that he doesn't exhibit, it's the wrong diagnosis!

From here, be warned, I tend to ramble, but I feel you might find some relevance, so bear with me:

Keep fighting for your son. Demand the right diagnosis. Do NOT be afraid to seek a second opinion.

To know what I've been through at the hands of uncaring or incompetent doctors and psych professionals, feel free to browse my previous posts, I've poured out my heart here and found a lot of help and support. In a nutshell though, upon seeking a diagnosis of ADD at 35, I eventually managed to be tested and diagnosed as maybe. Maybe I have the inattentive subset of ADD, maybe I have Dysthymic Disorder (chronic depression) and maybe I have Borderline Personality Disorder.

Without boring you with 15 pages of life history, let's just say that I do not have Borderline Personality Disorder. Anyone who knows me at all can tell you that I don't fit those symptoms. I am depressed. I'm depressed because of the sheer disaster that I and my ADD brain have made of the 35 years I've been given so far. I have a very negative self image, again because of who and what I've become. The problem is, my life isn't a disaster because I'm depressed, I'm depressed because my life is a disaster. Thus, treating me for depression is pointless, because treating the symptoms does little good if you don't treat the cause.

So, I got my 'maybe' diagnoses and accepted them because: "well, they're the professionals, they must know better." They didn't. I was started on an SSRI (Celexa) for depression and the result was somewhat opposite of what was intended; I nearly died. The SSRI sent me into a depression the likes of which I've never experienced. I spent entire days in bed, I stopped leaving the house while on this medication, because I couldn't face the outside world. I dropped out of University and nearly lost my job because I wasn't attending. I planned my suicide, and left instructions as to how to deal with my corpse (which was 'donate me to science or leave me in a ditch, so long as I don't cost anyone any money,' just to give you an insight into my frame of mind at the time). I credit my fiancee with saving my life by convincing me that I wasn't myself and to quit the SSRI. It took me five weeks to feel normal again, but I can honestly say that I've now experienced real depression, all thanks to a faulty diagnosis.

In the seven months since I first sought my diagnosis, I've been seen or evaluated by two Psychiatrists and two Psychologists in addition to working regularly with my General Practitioner. I have also had a Psychiatrist refuse to see me. I have had no luck getting a firmer diagnosis because no one seems willing to take the time to listen to what I have to say about my condition (with the exception of my GP). I've had a Psychiatrist, after hearing I was seriously contemplating suicide, tell me he's too busy to see me and to come back next week. I've had a Psychiatrist (a different one) tell me that I don't have the tools to function at a higher level in society, so it's important to take my anti-depressants and try to be happy with my lot in life.

I tell you all this not to complain, but to warn you that there are apathetic doctors out there. A lot of them don't know ADD well and will look for another diagnosis. Remember, they're human and will bring their own pet causes and prejudices to work with them.


In the case of your son's symptoms, it does look like ADD to me, because I suffer a lot of the same problems. I suffer from inattentive ADD and do not show signs of hyperactivity. The sleep (which may be lack of quality sleep or may be a symptom of the depression that he's suffering now as a result of his ADD), the confusion, the focus problems, the apathy. I took refuge in apathy early in my teens and have used it to deal with my ADD for a long time. Refusing to invest myself in anything enough for it really to hurt when I invariably fail has helped me keep some small semblance of self respect over the years. You'll also probably notice that he's extremely bright when something captures his attention and that he has problems getting motivated to do everyday things, like do his homework or take out the garbage. These things that are often attributed to laziness are real symptoms of ADD (and improve with treatment of ADD).

As far as how they'll test for ADD, a good ADD test will include memory tests and an IQ test, looking for a large disparity between his verbal and performance test scores, specifically relating to processing speed (as an example, my verbal IQ is 121 while my performance IQ is 90 with a processing speed of 84). A good test for ADD should include test of focus, mine was tapping a key on a keyboard in response to seeing letters appearing on a computer monitor, tapping the key for some letters, but not for others. They will also want as much information as possible about his history, as ADD is something that shows early in life, it does not develop when someone is older unless there is brain damage (such as head trauma).

The moral of all this is don't blindly trust the doctors. They are professionals, but they're also human. Some really seem to care, others not so much. Think critically about any diagnosis you receive and demand answers for symptoms that don't fit. Monitor your son closely on any medication that he is prescribed, because side effects can be dangerous.

Above all, you are an excellent mom! You care enough to see that your son is happy and healthy, who could ask more than that? No one expects you to have all the answers, just keep fighting for your son. There are a heck of a lot of kids out there whose moms don't fight for them, you're on the right track and you're doing great.

P.S. There you go Bob. You called down the thunder, so there it is!

Last edited by Thunor; 04-07-2008 at 01:59 PM. Reason: I somehow stuck the word "way" in the middle of a sentence where it didn't fit . . .
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Old 04-07-2008, 07:48 PM   #4
VioletRose89
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Join Date: Apr 2008
Location: California
Posts: 11
Re: Inattentive disorder

Bob & Thunor, you do not know how much I appreciate your responses! I am crying here! I was starting to think that my son just did not have a lot of promise in his life. It has been breaking my heart.

Bob - you mentioned the ODD - my son has never, ever been in trouble like that. The worst he was doing was ditching school. He was failing miserably and hated school with a passion. While he is not dumb, it is again the lack of focus. This has been since Kindergarten! He was labeled a "problem" but never was a trouble maker. He just did not do well.

Thank you so much for sharing your story Thunor and for the suggestions. My son is a good boy - he has his issues (mostly his choice of hair cuts and music, very minor stuff) but he is still for the most part a very good kid. He is also pretty immature for his age. He wants to be more mature and have the privileges of this, but not enough to actually mature. lol If that makes any sense.

I just really appreciate your replies - more than you can ever know! I was feeling so helpless for so long. I just did not know what to do anymore. Thank you again!!! I hope that the doctor will listen this time - but if not, I will push it.
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Old 04-08-2008, 01:35 AM   #5
Thunor
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Join Date: Feb 2008
Location: Canada
Posts: 241
Re: Inattentive disorder

I can relate to how you feel, the relief I felt when I saw my symptoms in others' posts on this board was incredible! It's easy to feel alone in the world, and it helps a lot to realize that you're not.

As far as promise, I suspect your son is full of promise, and I know that with your help and understanding he will be in a position to do great things. It's a boon that you've discovered his issues now, as opposed to when he's much older (I was 35 when I figured out what was up, Bob was in his 50s?). He has his whole life ahead of him still.

If you need support or information, this board is a great resource, so don't be shy. Welcome to the community!
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