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Old 04-27-2008, 07:16 AM   #1
mandy14
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Join Date: Apr 2008
Location: Adelaide, South Australia
Posts: 38
Question CIN 3 and now VIN 3

Hi everyone,
I am new on here, only just found the forum, and so glad you are all here. I would like to know if anyone has had VIN?
I had a LLETZ procedure done in January 2004 for CIN 3, and followup smears were clear. I then had a baby in Sept 2006. After the birth, I felt as though I was bruised when I urinated, which the nurse said was a result of the birth. Didn't think much more of it. Had my pap smear in December 2007, all clear. (had not resumed sex at this stage)
But, I got the same feeling after sex. I would be sore for a couple days, then ok again. I would also get an irritating itch some times. Still didn't stress about it though. Then I went for my pap smear in Jan 2008, and mentioned what had happened on and off to my Dr. She couldn't really see anything, except a very small cut/ulcer on my vulva. Referred me to Skin and Cancer clinic. I had a biopsy done which came back VIN. Then referred to a Gynae Oncologist. Cutting all this a short as possible, I had a wide excision of a lesion and other suspicious areas biopsied on the 21st of this month. I also had another Colp done while under anaesthetic. I get the results on the 2nd of May.
Has anyone had this happen to them? I was told that you are at higher risk if you have had CIN 3 etc. No one told me this could happen. I had no idea that having a smear would not pick up cell changes on your vulva. The biggest lesson I have learnt from this, is make sure your Dr always checks your vulva too when you have your pap smear. Evidently they can sometimes detect small skin changes. Make sure you look too.
Mandy

Last edited by mod_007; 04-27-2008 at 10:38 PM. Reason: Not editted this time, but please refer to abbreviation sticky for future posts
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Old 04-27-2008, 02:43 PM   #2
Pickle Eyes
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Join Date: Apr 2008
Location: Somewhere In TX, USA
Posts: 3,307
Blog Entries: 21
Re: CIN 3 and now VIN 3

Mandy, I don't know much about VIN3, so I am of no help. So I am just popping in here to say I wish you peace, understanding, and health!
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Old 04-27-2008, 07:57 PM   #3
mandy14
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Join Date: Apr 2008
Location: Adelaide, South Australia
Posts: 38
Re: CIN 3 and now VIN 3

Thank you for your reply Pickle Eyes, and your thoughts.
I just hope that everyone that reads my post, will become aware of VIN. If anyone has tested positive to the HPV DNA, then you are at risk. There are other reasons that you may get VIN, but having CIN is a reason to watch and be aware. VIN is like CIN, and can turn to cancer. Some women have to have a vulvectomy, which is the removal of their vulva or worse. I dont want to scare anyone, I just want everyone to know about it.
I'm feeling pretty sore and sorry at the moment, very hard to sit, and walk with all the stiches. But I am thankful it has been caught before it got worse. Obviously I get results of the biopsies on Friday, but I am thinking positive that I wont need anymore surgery.
I wish everyone on the message board health and peace.

Mandy14

Last edited by mandy14; 04-27-2008 at 08:22 PM. Reason: VIN is the same as CIN, only its affecting your vulva not cervix.
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Old 04-27-2008, 08:29 PM   #4
Steph8681
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Join Date: Apr 2008
Location: California
Posts: 11
Re: CIN 3 and now VIN 3

Hi Mandy,

I have never heard of VIN 3. I am currently at CIN 3 and am only beginning this process. What is VIN 3?

Good luck. I am glad you found us....these women are great and very supportive. Let us know on May 2nd.

Many hugs
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Old 04-27-2008, 09:09 PM   #5
Pickle Eyes
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Re: CIN 3 and now VIN 3

Mandy, thank you for the information on VIN. I had seen it, but it was early in my research (only a month or two ago).

Steph, what procedures have you already had?
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