dementia drugs

[jagsmu]

I have seen lots of postings for these...my mom is on none...would you guys list some that your parents/spouses ect. are using and thier side effects that you have noticed I would like to do some reserach and look into these.. I will be talking to our dr. and would like to be an informed caregiver and if there is something out there that can slow alzhimers down even a bit I think it is worth a try...

[Martha H]

They tried both Aricept and Namenda on my Mom. There was no effect except bad side effects. I was told that the drugs can slow the progression if the disease was diagnosed early enough. Hers wasn't. No drug yet known can stop the disease or reverse it. But research is being done.

Martha

[DGabriel10]

Mom and Dad are both on Aricept and Nameda. Neither of them have had any side effects but I am not sure of the benefits either. Dad's is vascular dementia rather than ALZ. He was misdiagnosed with ALZ in the beginning so I am not sure if the meds were ever effective for him. Mom realized her mind was slipping and hid her inabilities by explaining it as a result of depression or that Dad did it. Living 4 hours away didn't help. By the time she was diagnosed, mid stages, we were told that these meds would probably have little effect but they wanted to try them anyway. They are definitely more effective in the early stages. She had cognitive testing, was on both meds for nine months, and then retested. Her testing showed significant decline during that 9 months. At that point we knew what we were dealing with and she was at a point where the cognitive testing was no longer beneficial to their research or her well being. So... I think at this point, with these being the only two options available, they are taking the medication more for our hope than for results......

Love, deb

[Janie5301]

I agree with Deb and Martha. My DH was diagnosed with Pick's and was put on both Namenda & Aricept as they were the only drugs available. Prior to his death, I had him admitted to MCO/UT Medical College of Ohio for a medication evaluation and the first thing they did was take him off both meds as they believed they had no affect on the illness. When he was taking them he had no side affects at all, but he was in his 50's so that might have made a difference as sometimes elderly patients are more sensitive to certain meds. Research is happening but I don't think we're there yet...

Good luck,
Janie

[meg1230]

About 8 years ago we noticed my mom's behavior changing. Almost mean...never smiling anymore. I went to her doctor (behind her back)and he put her on Reminyl (sp?) which is now called razadyne. Well, the change in her was almost immediate! It was like the sun had come out on her again. It doesn't last forever but it gave us some time with her as she was..as she used to be. Eventually, she became mean and unruly again. Then after my step dad died 6 months ago we took over her medical care.
(She went with us kicking and screaming..she is in such denial!)

When we took her to the doctor he prescribed Lexipro..Oh My Goodness...did that make a difference in her demeanor....again she was smiling ...calling me sweet names, kissing me...huh?! We called it her happy pill...well, that was 3 months ago and just this past week and a half she has slipped back again. So we have a call into her doctor to see if anything needs to be adjusted...he also put her on Namenda once her test score numbers started dropping...she went from 24 to 20 in a short time so he prescribed Namenda saying studies show it could slow the decline. We haven't seen that, in fact, since my step dad died we see a definite decline. Mostly in her memory and her ability to find the right words she is looking for..

At one point while my step dad was in charge they did try putting her on an anti psychotic drug but it didn't work. She started having nightmares so they took her off of it. I don't know what that drug was since they tried to keep us in the dark about it all.

All I know is that for her the meds may not have slowed things down per se but it has helped in her quality of life. (and OUR quality of life !!) Her doctor calls her one of his best patients in that she has progressed slowly...all of that is changing now though.

Meg