Tired of Doctors not understanding

[Elisa123]

Hi everyone, I am new here. I don't know what to do anymore. I am suffering beyond belief. I think I take reflux disease toture to a whole new level. I have spent thousands of dollars on tests, had manometry, bravo ph, endoscopy, gal bladder hida scan, gastric emptying, stool analysis, candida blood test, breath test for bacterial overgrowth, ect. I have been diagnosed with eonsiphilic esophagitis, bile and acid reflux, and an esophageal motility disorder. My problem is quite unique and no doctor seems to understand my affliction. I have bile that comes up into my throat and burns I dont know why it does that, but it doesnt matter what I eat, it comes up. For the past year and a half the bile has burned my upper throat so raw I can't even eat I am in agony. The pain feels like someone has burned my face with a lighter. The pain has progressed and spreads all over my face, my eyes and ears. I have tried EVERYTHING from fasts to liquid diets to juicing to baby food and evrything I eat burns like hell. I am at witts end with this illness and I cant take the agony anymore.
I tell the docs my problem and I even asked what about a feeding tube and they all look at me like I am nuts. I tell them what I am supposed to do??? I cant eat Im in so much pain and all they tell me to do is to ignore it and eat anyway. HOW can anyone ignore this?? It has ruined my life and I cant take this anymore. Im so sick of doctors it seems like all they do is pop prescriptions to you, never wanting to try anything else that could possibly give someon a chance at living a normal life. Obviously most of them probably have no clue what its like to suffer with a debilitating disease like this...Im so fed up I cant take this anymore. I told my doc I cant take this anymore. So you know what he did? Write me a prescription for xanax and told me to take 4 times a day. Waht do I do? Where do I go? Im so angry and depressed and wish there was someone out there who understood what this was like. Thank you for listening.

-Lisa

[CharBerry]

You poor thing! I know this is the last thing you want to do but you have got to find another Dr. no matter how far you have to go. In your case, I would try the surgery. Can you check and see what good one's are in your area? I will help you if you tell me where you live. You can't go on like you are and this will cause much damage. I know how much you are suffering and you must get help.

CharBerry

[nessie01]

hi

so sorry for all the pain you are having im struggiling myslef.

im going to start a new plain of attact as i dont think i can tolerate PPI

my suggestion to you is go and see a natropath and find yourself another doctor

in the meantime but some slippery elm and some manuka honey

make some slippery elm tea make it very thick and drink 3 cups per day.
eat honey by the teaspoon and eat as much as you can tolerate...honey has really helped my throat heaps...........take a huge teaspoon before you go to bed as welll.

buy some homeopathic arnica from the health shop and suck onthese to help heal the mebranes in your throat.

get some liquid minerals available from the health shop and you could even but these into your slipery elm tea, they will help to give you vital minerals that your body needs to heal.


my mission is to heal this intolerable deasease myself as well.

my plan is to take digestive enzymes and probiotic with every meal, slipery elm tea, lots of honey like i do now, homeopathic arninca and tissue salts for relfux, and i have found a link that was on this or anther site on exercies to help strenghten the spincer muscle i think, will post once i find them.

i am also going to go to a speicisit homepathic to get advice on what i should be doing as well.

good luck and take care

[TEdds83]

Dear Lisa! I am so sorry you are feeling absolutely horrific. I struggle with this too. I had a weird sensation in my jaw and cheeks today. It is swollen and tingly. I think this reflux thing goes all over the place. I was going to suggest what nessie did. Try the natural pathic way. Here are a few things I have started using that may really help you.

1.digestive enzyme capsules (2 before each meal)
2.Licorice, slippery elm tea (great for throat and digestion)
3.acidopholus pearls (1 a day to get the flora in your stomach leveled out)
4.papaya/mint chewable tablets (for throat and digestion)
5.Silver Collidial spray (for your throat,kills bacteria inside and out!)

These items have REALLY helped me keep the reflux from getting worse. Alot of days I feel cured. You will find these items at your healthfood store. Good luck! You CAN and WILL get well.

[nessie01]

ted
are you taking all these natural things with PPI as well or are you just doing the natural way now!!!

i am going for natual but i may buy some OTC stuff to try ...like taking a little something just before bed....this might help wiht my dry throat and yellow tounge in the morning...im am off for a barum cat scan tomorro just to make sure i dont have any other stuff like ulcers etc

i have all so read that msm is supposed to very good for reflux as well
cheers