mystery vaginal condition

[mayriv8409]

I seem to be suffering some sort of mysterious condition. About 8 years ago I started noticing redness, itching and soreness around the vulva and labia. The gynecologist diagnosed an infection and I followed the treatment after which the pap test came back negative, but I felt no relief whatsoever. So I kept going back. I thought I had a venereal disease but it never came up in any of my tests. Every time I visited the doctor there was a new theory. I even had a lot of intrusive procedures done, I never understood why and they made no difference. Every test that was performed always come back negative and yet in all these years I have never felt relief.
I changed gynecologist and again all the tests came back negative. I tried antihistamines and symptoms remained the same, so it's not an allergy. The doctor then put me on Diflucan and Lotrisone in case it's some kind of topical fungus but I have seen no major improvements. I have also tried vinegar baths, gentian violet, changing my diet, everything I can think of and I still feel the same. What frustrates me the most is that no one has been able to diagnose me with anything and yet I'm not well. I'm so tired of feeling this way. This condition has made me isolate myself. I always feel awkward, uncomfortable, different. I can't even remember what it feels like to be healthy. And of course, it has been a huge obstacle in my relationships.
If anyone has any information or has suffered something similar I would greatly appreciate any insight.
Thanks!

[janewhite1]

Hi, mayriv8409.

I'm sorry to hear you are dealing with so much pain and trouble.

Have you seen a vulvar specialist? There aren't too many of the out there, but it definitely sounds like it's time for you to find one. That's a gynecologist or sometimes a dermatologist who's had extra study in that particular part of the body.

You might have a condition called vulvar vestibulitis, I have that. Look it up, ask me if you have any questions.

Do you practice vagina-friendly hygiene? No chemicals touch the vulva, ever, including soap and spermicide? Wear only white cotton underwear washed in hypoallergenic detergent with no bleach or fabric softener?

[kellis]

I have the exact same thing! I was diagnosed with a yeast infection a few months ago after finishing antibiotics. My doctor prescribed Diflucan, and after taking one pill, the symptoms seemed to get better. Then, it came back, so i took it again, and it is still bothering me! My whole vaginal area is red and burns and itches like crazy!!! I can't get any relief! My inner labia are also red and a little swollen, and it burns when i pee! I don't get it! How many more times can Diflucan be repeated???? I have thought about getting a 3 day cream to see if that would help, but i'm at my wits end!!!!

[alexis1234]

Some yeast are resistant to diflucan. Try to get a fungal culture to see if they can identify a yeast strain and then figure out what would work. Most are albicans and would be helped by diflucan but some are not. A reg. culture for yeast won't tell you which strain.

Also see if you can test for trichomonas which also causes itching.

Also mobiluncas.

I read these in the V book by Elizabeth Stuart.

Alexis

Originally Posted by kellis

I have the exact same thing! I was diagnosed with a yeast infection a few months ago after finishing antibiotics. My doctor prescribed Diflucan, and after taking one pill, the symptoms seemed to get better. Then, it came back, so i took it again, and it is still bothering me! My whole vaginal area is red and burns and itches like crazy!!! I can't get any relief! My inner labia are also red and a little swollen, and it burns when i pee! I don't get it! How many more times can Diflucan be repeated???? I have thought about getting a 3 day cream to see if that would help, but i'm at my wits end!!!!

[misty073]

I have been dealing with the exact same thing as you for the last 4 years. I am so relieved that you have posted this. I tried once before on here to see if anyone had the same symtoms as me but never found anyone. Mine started 4 years ago when I was pregnant with my son (3rd baby) I thought I had a yeast infection...they tested me for everything possible and everything came back fine. I have seen numerous drs and no one can tell me what is wrong...I have had so many prescriptions (that dont work) right now I am on Hydroxyzine but I have just started to take them and really havent noticed an improvement yet. I have an appointment to see a dermatoligist next week to see if they can tell me what is going on.