clueless about symptoms

[asgatchel]

I am a college freshman and have been sick since last November. I constantly have headaches and I get off and on fevers. I am extremely tired no matter how much I sleep and when I get really worn down I start to shake, and the other symptoms worsen. I have seen many doctors and been tested for so many things (lupus, mono, thyroid, CFS, etc) but they are all normal. I have even gone to the Cleveland Clinic - but nothing has been found. If any of you have any ideas, PLEASE let me know. Thanks

[perrinsln]

Hi, just noticed your post. After 7 years of being sick, i was diagnosed with CVID. Common Variable Immune Deficiency. Apparently it is genetic but was brought on by getting EBV & CMV [mono], as there are cases of adult onset, ie. you do not have to have the symptoms in childhood. I notice you mention you had the test for mono and it came up normal. I had the mono tests done several times over a two year period before they showed up positive. So I would urge you to have them re done again and possibly consult an immunologist. You can find more information on [url="http://www.Immune"]www.Immune[/url] Deficiency Foundation.org or the Jeffrey Modell Foundation Foundation info@jmfworld.com
Sharon

[hippiegirl]

Hi- Actually my son was having severe sinus infections and nothing worked. His allergist finally send him for a blood test that checked his immune system. This is when we found out the he had Common Immunodeficency Disorder. His allersist is GREAT and we also live in Ohio. He has several offices, so if you want me to give you more info on this, please feel free to e-mail any time!! E-mail me at hipiegirl@aol.com. I hope I can be of help. Good Luck!

[Liisa]

What blood results indicated that he had CVID? I am curious what bloodwork was done..was it a common test?