I am a 30 year old female who up until 5 months ago, had never been sick with anything other than a cold! I had a few days of flu like symtoms and a high fever and after 10 days of feeling rather ropey, I went to the doctor who ran some blood tests. Haemaglobin (H)6. Since then have seen fantastic haematologist in London who put me on Prednisolone (P). Ran loads of tests to see if I had anything nasty that could have caused this 'haemolytic anaemia'. Nothing showed up. However, I was still getting extraordinarily high and somewhat aggressive fevers which was apparently unusual. Was admitted to infectious diseases unit of the hospital in case I had Malaria etc.. Nothing. Tested for Lymphoma - bone marrow biopsy, scans, more blood tests - nothing. As a result I have Idopathic AIHA. P reduced over time from 40mg to now 5mg per day. (H) rose to 11.2 but recently dropped again to 9.8 and they have now put me on something called Mycophenolate or Cellcept. If this fails, they are talking about a Splenectomy - not too keen! My questions are a) Does anyone have Idiopathic AIHA with these fevers? b) Anyone else been on Mycophenolate? and c) I feel OK some days - is this normal and if this is bareable should I avoid Splenectomy? I would so like to hear from anybody with AIHA and your experiences. Thanks Fish xx
Idiopathic Autoimmune Haemolytic Anaemia
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