Hey there, I just read your post and as I have said on the other posts that I am doing, so sorry no one will answer the posts all they do is read, I have had a post on the lymphoma board for almost a month with no replys. I have several neroumusclar diseas too and I am in the final stages with wheelchair waiting on me.Do not fool around your symptoms need to be assessed by a nerologist, you could get some help or wait too long where they cant help you like me, I waited too long to go to neroulogist too but I am so glad I did. Go check it out and let me know your outcome, I will be posting my dx and questions in a bit, too tired right now, take care gidget