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Old 06-30-2002, 01:55 PM   #1
DebiBear
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Join Date: Jun 2002
Location: Huron, TN USA
Posts: 1
Thumbs down Charcot marie Tooth Disease

I am 50 years old with Charcot Marie Tooth disease (CMT) Life has become totally miserable in the last year or two. The lower muscles in my right leg have atrophied and the right foot is in really bad shape. Arm & hand muscles are very weak also. I am in constant and agonizing pain and feel so very tired at all times.
If not for my wonderful husband, I don't know what I would do. He works 8 to 10 hours a day, 6 or 7 days a week and then comes home and caters to me. As I can only walk short distances now, he bought me a wheelchair so he can continue to take me places and "show me the world"!
Anyone else with this disease, please reply.
Thanks!

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Old 07-21-2002, 03:27 AM   #2
JennyRob
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Join Date: Jul 2002
Location: Lancaster, CA,93535
Posts: 2
Wink

I have CMT also . Come and join our list at yahoogroups.com the name of the list is CMTUS. A new treatment is on the horizon called NT-3. Hope to see you soon


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