ALS or Neuromuscular?

[CJFla]

I am a 27 year old female.
In July of 2002 I started having shooting pain and then dull pain in my right leg, the pain would come and go. At first Dr’s thought I had a blood clot because of BC pills, I stopped taking BC pills and had a test done for Leiden factor 5 which cam back positive, I had several Doppler ultrasounds all negative, I did have a positive D-dimer but Dr. said it was non-specific test and would not rely on it. This went on and off for months with the leg pains then I started being tired all the time and was having horrible headaches, which sent me to the ER twice… I was told over and over it was stress the Dr. tried me on several antidepressants, it was a joke…. So finally I did a little research and compiled a list of things to be tested for a few of them were B-12, ANA Lups, Hypothyroid. The thyroid test came back in November at TSH 18 so Dr. put me on Levoxyl and just last week I had a TSH of 2.8. The problem now is that I still have pain and numb weak feeling in my right leg most of the time, I also get muscle twitches and spasms it is somewhat in my left leg but not nearly as bad. This past week I woke up with pain and severe weakness in my right hand and arm, the same on the left but not nearly as bad. I also have been having shooting pains up the sides of my neck and also in my right jaw line. I was told this was stress as well and that I should get a massage. I did get a massage and it was nice but I still have shooting pains. I also have a slight increase in saliva but I have had a cold lately. I also have severe endemotrious discovered when I was 21 and a slight Kyphiosis and scoliosis from childhood. Could this be ALS or some other neuromuscular thing.

[jftobias]

far as i know u don't have pain with als cause my hubby has it and its not a fun disease.

[barchin]

CJ, See my post on the Lupus board. I don't know.... I think it could just be low thyroid? Marlow

[jellebeans]

hi,im also 27 /female and for 5 years have felt so unwell but doctor can find no answers,im desperate for a pain free day but have now given up going back to doctors as im sure he dont believes the pain im in or he thinks im just stressed which is not the case.my severe headaches and shooting pains in my head started first which i also had a few trips to casualty for!!then started the bad crampy sort off pains in my arms and legs also really bad shooting pains,i also get them in my neck to. every so often i have very bad chest pain which will last a few hours and my doctor dont seem bothered about!its my head pains which are the worst,and i honestly think i have something which is going to kill me as i feel so ill and tired all the time.ive had brain scan to check for tumour but was all clear.
i dont understand the tests you had,were they worth going for?i was wandering about ms but not sure if we fit the symptoms?!

[apriltones]

hi jelly bean, im april. i normally post on ms and fibro board. i have similar symptoms. especially crampy aches in arms and legs. i have it now in my shoulders. doctors are puzzled, im still waiting for mri. when did yours start? love aprilxx