anyone out there with myasthenia gravis?

[cindyandbob]

My 55 yr. old husband has MG. I was wondering if anyone else reading the Neuromuscular board has MG as well.



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Cindy T.

"We are visitors on this planet. We are here for ninety, a hundred
years at the very most. During that period we must try to do
something good, something useful with our lives. Try to be at peace
with yourself and help others share that peace. If you contribute to
other people's happiness, you will find the true goal, the true
meaning of life."

~ The Dalai Lama

[kiki lou]

I do.

[Koulafeena]

I also have MG. It'd be so nice to have our forum on this board, don't you think?

Koulafeena

[clarndeb]

hello this is my first time hear i have congenital MG i have had it all my life 43yrs it is getting much worse i take mestinone but it dosnt help much my doctor says there isnt anything else to do or take if anyone knows of anything i need help badly i am getting very weak. thanks

[Koulafeena]

Are you going to someone who specializes in neuromuscular disease?

Are you anywhere near the Cleveland Clinic?

How far could you travel?

If you could call over to the Cleveland clinic, maybe they know of someone who specializes in congenital MG.

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Sincerely,
Koulafeena