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Old 01-23-2003, 10:03 AM   #1
charlotte1
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Join Date: Dec 2002
Location: Ky USA
Posts: 158
Post mel

mel,
I am so sorry to hear your having trouble. how are you feeling today? Are your bladder symptoms better? i don't know what your symptoms are but am very curious. I want to think that maybe its as simple as a bladder infection. hang in there!!!!!!!!!! i'm thinking about you and keeping you in my prayers

ps. i pick up my cute little yorkie today.
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Old 01-23-2003, 01:03 PM   #2
melanie dawn
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Join Date: Dec 2002
Location: welland, canada
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Hi Charlotte,
congrats on the new puppie, is it a boy baby or a girl? I was tempted last week to bring home another great dane puppy, a beautiful fawn with a black face mask. A definate show boy, but my head took over and i realized now is not the time. But oh my he was a beauty,7 weeks old.
My bladder symptoms, for about the last three months, I have been having terrible urgency when I am laying down, no infection. Now I alternate between urgency, and not being able to go ,my family doc thinks it is progression of the cord symptoms. Also when i lay down, I have to look, because I dont know where my legs are.This whole thing is getting really scary. I cant walk far at all now. The only place I go is to the grocery store, because walking is better when i can use the shopping cart to hang onto, for support and balance. To be honest I am getting pretty down.
Let me know how the new "baby" is , and of course yourself. Did you rebook your myelogram? And when do you see the NS again?
Take care Mel
__________________
Congenital Cervical Stenosis,complicated by:
Paracentral Disc herniations ,bone spurs C4/5,C5/6,C6/7
loss of lordotic curve
Advanced myelopathy inc. walking difficulty, loss of gag reflex with swallowing problems, neurogenic bladder, occipital neuralgia, spacticity
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Old 01-23-2003, 02:31 PM   #3
Debbie2
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Join Date: Jul 2002
Location: Middletown, MD
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Mothmin had a bit of bladder problems after surgery.
It went away, hope you are okay.
Deb

------------------
Debbie2
ACDF fusion (c5c6) with titanium plate and screws using donor bone -
September 4, 2002.
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Debbie2
ACDF fusion (c5c6) with titanium plate and screws using donor bone -
September 4, 2002.
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Old 01-23-2003, 06:50 PM   #4
charlotte1
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Join Date: Dec 2002
Location: Ky USA
Posts: 158
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Mel,
I am really frustrated with the medical system. It seems to me the symptoms you are experiencing should be some type of emergency. It never seems to amaze me how spinal problems, which are probably one of the most serious diagnosis, are put on hold for so long. Thank God that your neuro visit is less than a month away. Are you still having headaches too?
I'm like you on putting things on hold for now. I feel like after we see the right doc things will be ok though. We've just got to get to that point. Do you know anything about the doc your going to see in Chicago?
I think there is a huge need to make physicians, the community, and govenment aware of the severe problems facing people with spinal cord disorders. I still believe with all my heart that something good will come from this nightmare. God be with us all.

My myelogram is scheduled for feb 5 and hopefully I will see my neuro doc soon after. The good thing is my husband is off work that day. At least i don't have to impose on someone else to take me. Its hard enough for me to ask hubby to do it what less someone else.
I did decide to try and turn this in on insurance. It seems like that is a huge ordeal. We pay insurance everyday of our lives but if the time ever comes to collect from them its a different story. My agent said i will probably need a lawyer. Thats just great because the guy that caused my wreck is a good friend.
He wants me to agree to no lawyer/suits and just let him foot the bill. I have a real problem with that. He is rich and can afford it but heck we've been paying ins premiums all our lives. What in the world for if you can't collect. what a headache all the way around.
now for the sweet happiness in my life. this little yorkie can turn around in the palm of my hand. it is only 6 weeks old and completely adorable. I have been warned to watch for hypoglycemia. Apparently these little things are very fragile. My husband is not very excited about it but i feel he will come around.
I wonder if i can teach the new member of our family to ride on my motorcycle. What do you think?
I bet great dane pups are sweet. I've always thought they are beautiful dogs, even considered getting one at one time. The trouble was there weren't any in this
area. I thought about bringing the lab in tonight because its so cold here right now. He stinks. I encouraged him to get in the bathtub but he just turned around and walked out. Which is just great, as you well know, because i don't have the strength to
make him do anything right now. Its a good thing he is well behaved in all other areas.
I usually don't talk much. I guess i was in the mood.
please keep your spirits up. This will all be over with before long and be nothing but a bad memory. And then we can get back to what we do best.
charlotte

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Old 01-24-2003, 11:09 AM   #5
melanie dawn
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Hi Charlotte, or should I say "chatty cathy" ha ha
With the little yorkie, your right about hypoglycemia, if she doesnt eat, slip her litle treats for provention. Yeah, it's brutally cold here also, my dogs dont even want to go out and pee. Cant really blame them, they never make a mess in the house, thank goodness!
My dane female is in season, I think i will set up a breeding , there is a beautful dane in the area, an import from Sweden this year, so i will try to set that up this week.
As for the doc in Chicago, he was chief resisdent here at the sick kids hospital, then he was at John Hopkins, professor and practicing. His specialty is spinal stenosis, Chiari malformations and neurovascular. he comes highly recommended. So here is hoping. So far the nurse practitioner at his office has been very supportive. Three weeks to go ; I can hardly wait.I go in at 7, have my testing in the morning, then the meeting with the nurse, then the neurologist, and then right to the neurosurgeon. I will leave with everything in hand, test results, diagnosis, treatment plan. Really very organized. But that is all that they do, they are a neurosurgical hospital, comprising 30 neurosurgeons, etc. I feel also that my whole life somehow is on hold and waiting on this.
Take care of youself and your new baby.
Mel

[This message has been edited by melanie dawn (edited 01-24-2003).]
__________________
Congenital Cervical Stenosis,complicated by:
Paracentral Disc herniations ,bone spurs C4/5,C5/6,C6/7
loss of lordotic curve
Advanced myelopathy inc. walking difficulty, loss of gag reflex with swallowing problems, neurogenic bladder, occipital neuralgia, spacticity
melanie dawn is offline
 
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