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Old 12-21-2000, 06:09 PM   #1
cheliqua
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Join Date: Dec 2000
Location: Nashville, TN USA
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Question Stroke caused by blood clooting disorder

I am 27 and just recently found out that I have Factor V Leiden following many pulmonary emboli, DVT's, a stroke at birth, and 2 TIA's. Anyone else have this problem?
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Old 12-22-2000, 04:52 PM   #2
Peter Brown
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Hi Cheliqua,

I am forty 45 and had a massive stroke complicated with a haemorage, followed this with a large DVT left leg and for good measure a Pulmonary Embolism.
The cause for all of this has been identified as 1. factor V leiden mutation (hereditary) 2. lupus anticoagulant 3. anticardiolipin IgG antibody All these elements combined caused the various clots that I had.
As for the stroke I was in a coma for 5 days, quadruplegic for 4 weeks, learnt to walk in 5 weeks, I have no known memory or speech problems ( all though I should). I have regained my drivers licence, and returned to my old job part time.
I have been classified as having APS AntiPhospolipid Syndrome. For me I am on a life long therapy of Warfarin (Coudamin) which is a blood anticoagulant.
If you want more information please email me at pbrown_aus@hotmail.com

regards, Peter


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Old 12-30-2000, 01:44 PM   #3
LESLIE_IN_PGH
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HELLO, CHELIQUA!
I AM 33 AND HAVE BEEN HAVING TIA'S/SMALL STROKES FOR ALMOST TREE YEARS...I AM CURIOUS WHAT KIND OF DOCTOR FOUND YOUR CLOTTING DISORDER...LOOKING FOR HELP!
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Old 12-31-2000, 01:05 AM   #4
Peter Brown
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Leslie,

The elements that I listed above in this message string as causing my various blood clots can be tested for with various blood tests. The hereditary problem will always be there if you have it. The other items can drift in and out of whack so testing is not always conclusive. It may be a start for you though, your local GP can get you started.

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Old 12-31-2000, 12:00 PM   #5
cheliqua
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Leslie,

My Internist was the one who discovered it. Now, I am followed by a hematologist and also a high risk OB/GYN. They are still baffled about all the events, but the main thing is as of right now, Coumadin seems to be doing the trick! Hope this helps!!!
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