Bearygood, I seem to have ongoing sinus issues. I wonder if it might be related to medication? The problem I have is that I don't what meds I'm on. It is either Avonex or Copaxone, or a combination of both. HMM....time for a little research methinks. Mitch
When I first got ON (before I was dxed with MS) I did a lot of research and did find that in rare instances it could be caused by sinusitis (forgot exactly which sinus cavity). Well, turned out that I had MS but ironically, I did have a sinus infection at the same time. That said, there are some theories that there is a connection. If you've seen enough of my threads, you know that I personally believe that MS can be caused by different things in different people and bacteria is one of them. This came up for me again today because having bouts of sinusitis over the years, after seeing my CT scan, I think my ENT has finally convinced me to have endoscopic sinus surgery. I wasn't at all surprised -- and actually expected this -- that the culprit area is the left side. My ON was in the left eye and even before I had that, there were times I had sinusitis and experienced a foreign body sensation in that eye too.
I'm not suggesting that this surgery will make my MS go away but do I discount a possible connection? No, and there are some much more highly qualified people than myself who don't either.
As you know I'm undx but I just wanted to share that I too, have had many sinus issues and have had sinus surgery myself. I had headaches that no pain reliever would touch and an ongoing headache for over a year. I finally got tired of dealing with the pain and cat scan was ordered. I had multiple polups removed over 15 years ago. It was not a fun surgery, I might add.
Heres another theory of common in relation to our other thread about viruses and Ms!!
Cindy, I wish I could post some of the articles I found. There is definitely enough there so that further research would be warranted.
One of the articles had a slightly different spin, theorizing that people with chronic sinus inflammation have an exaggerated immune response to common airborne fungi. Interesting to me because not only did I have sinusitis and ON when I was dxed; I had also just found out that I'd been living with mold for 7 years and one of the strains is mentioned in this article. Before I even saw this, I've often wondered if the mold in my apartment helped trigger an attack and maybe even have a hand in my MS progressing. IF I've really had MS for as long as my specialist suspects, it had been dormant for many, many, many years.
I did a poll somewhere and although only 17 people with MS responded so far, 8 of them have had chronic sinus infections without ON, 9 had chronic sinus infections and have had ON and 1 had no sinus issues. Not exactly a scientific study but I thought it was interesting! In only one article (but it was long and a goodie) it mentioned a possible connection between CPN (bacteria), MS, sinusitis and ON.
You had headaches, huh? Yuck. Was it your ethmoids? (Ethmoid sinusitis is why I first started seeing an ENT and it was hard to dx.) Interesting too (or more accurately, MAY be interesting) that my horrible case of sinusitis and bouts with vertigo happened around the same time. In the 18 years + in-between, the only thing that I know was happening was that recurrent sinusitis...until now!
I had mine done many years ago and I'm hoping things have changed alot in technology for you. I was put out and didn't feel a thing. It was the after surgury bit I had a hard time with. It was uncomfortable. But I had ALOT of mess up there!!
Ask questions so you know what to expect. I just went with the flow and didn't ask. When it was all over, I was surprised it wasn't explained better to me. I had a wonderful ENT and he laughed and said "If I told you, you wouldn't have wanted to have it done"
Looking back, it definately was worth the discomfort in the end. But its definately better to know than be surprised!!~ Cindy
Bearygood~ Mine was an old fashiones scrape out!! yuck!!
Ya know, I find your research so very interesting and it all boils down to coinsedense but, I lived in a home when all this began and it had a running stream in the cellar. Literally!! It piped outside into a cranberry bog. It was very damp and would flood often creating alot of mold in my home. When I replaced a bathroom wall, the wall was loaded with molds!! Never found out what kind and moved out shortly thereafter
Myself and my 3 kids were sick quite often. All 3 kids had asthma, myself, alergies leading to surgery. My kids have been so healthy since leaving the home. Me, well, the saga goes on..
I've read another posting from you refering to molds and wonder if this might all tie in together...
I'm not sure if it does but I'm not sure it doesn't, either. Truth is, good chance the mold didn't cause my MS since the lesions on my brain weren't active. That said, I can't discount it completely because I'd spending most of my time in the last 8 years in the room that had the mold, working at home from my living room and there's no way to see how old the lesions are, just that they're old. However, I strongly suspect that at the very least, it knocked me out of a long remission -- and maybe even helped this progress. Maybe the fact that I had mono a long time ago and chronic sinusitis were factors and just predisposition and the mold was a big trigger. I'm not sure of anything, but I think it played some type of role.
My environmental engineer and the guy who remediated my apartment doesn't know exactly what I have but they know it's something neurological and boy, did I get mouthfuls from both of them on the reality of mold causing illnesses and athough not much is really known about mold, they DO know that it can wreak havoc with the CNS and respiratory systems.
There's a school of thought that there are some people who have been dxed with MS who really have been poisoned by the toxins associated with mold. I dunno about that, at least in my case. (I know if can cause MS type sx but I don't know about physical lesions.) There was that unexplained vertigo years ago that makes me think it does date back. But for me, do I think that a magic combo of chronic sinusitis, EBV and mold might possibly have gotten me where I am now?
Yes. Personally, I think my own MS is has bacterial implications. There are just too many "coincidences" and no history of MS in my family.
This definately has me thinking!! I knew molds were very bad for us to breath but I have never actually researched the affects. I know it definately was causing illness in myself and my children when we were living in it and my kids breathing problems have lessened since leaving 7 years ago.
I remember at the time we were living there, people were concerned that the house was filled with molds and I just ignorned it because this was our home. Never did I look at what it could do or cause because I think I feared what I might learn. But you have definately raised my awareness and will do some research of my own.
I think the respiratory connection with mold is probably the thing that has the most scientific support. (It has also been associated with lots of other things, including miscarriages.) I'm sorry you went through that, Cindy, but glad you are out of the house. It might be interesting to find out if the mold was ever remediated and if anyone else who lived there after you experienced problems. It's funny --it's commonly known that "mold is not good for you" but even though people believe it, they don't think about WHY! In one of the articles I read (I stumbled across one that actually linked sinusitis, CPN and Optic Neuritis) fungus was mentioned and at least one of the strains of mold I had, Aspergillus, was specifically cited.
This is very interesting,I suffered chronic sinus infections as a kid and through most of my adult life.They have lessoned but I still get 5 or 6 of them a year.
I currently have one now.
The mold has an interesting concept as I had transverse myelitis in 1998 and recovered with no meds and in 2004 started having symptoms again and thats when we started redoing an old home and in between the layers of dry wall there was black mold.This I will research further.
One of the articles had a slightly different spin, theorizing that people with chronic sinus inflammation have an exaggerated immune response to common airborne fungi.
Toni, at the very LEAST, if THIS is true (what I reposted above) it makes sense that things that wouldn't aggravate other people would aggravate those with chronic issues. And then, just like any other infection or illness, it can make our MS sx worse or maybe cause an exacerbation. A real domino effect that never stops and is NOT GOOD!
I discussed this with my ENT today, that I really don't get colds; I go straight to sinusitis! He told me that's often what happens and that over time, the antibiotics themselves become less effective. And, with each bout of sinusitis we have, the membrane gets further worn down and makes us more susceptible. 5 or 6 times a year is quite a lot! Even when I'm not running up to his office to get checked out (which is about 2 or 3 times a year) I'm sure I have "stuff" in there I just don't even address. I actually feel pretty okay right now as opposed to when I went to see him last week and was surprised (kind of, but not really) to see that EVERY single sinus cavity was filled up except one.
This is why I think I have to have this surgery. Possible causation aside, I just think it has something to do with something! Even if it's as "simple" as the info. I reposted...
Hey Beary, Ive often wondered about the chronic sinus issues and MS also. Ive had sinusitis for yrs!!! and actually had the surgery, deviated septum, polyps removed 4 yrs ago. I still deal with the constant clogging that I basically ignore anymore as just being normal. The surgery did help me. My left side was totally clogged. Now it clogs and I do blow it all out every morning.
"Living in America's Most Livable City"
Glad to hear the surgery helped. I think I've decided that with my schedule and other things going on, that I really can't do it 'til early next year. Sigh...I'm going to have another doctor upset with me but what can you do? Not to mention that besides everything I have to take care of, I am SOOOOOOO "doctored out"! He might get me to change my mind but right now I feel relieved by my decision.
Re: the topic, I really think there's something to this but I can't stress enough that I don't think it's a given for everyone, just perhaps a subset. I truly believe that one day we will see that MS can be caused by more than one thing.