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Old 06-12-2009, 07:36 AM   #21
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Join Date: Nov 2000
Location: Orange Park, Florida
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Lulubel HB User
Re: Facial Migraines not Sinus Infection

Hello.

Just to put my 2¢ in as a life long migrainuer. I have had migraines with aura since I was 13, I'm now 49. Other that Basilar migraines, I have all of them. Hormone (estrogen), food allergies (chocolate, etc.) sinus (i have polyps and living in florida the bp is always on the move), etc. But the worst one to date, my Neuro called a Trigeminal (spelling?) migraine. It affected the trigeminal nerve in the face. Granted it's been several years since I had it and I will take any other type of migraine headache over that one to this day. It felt like someone was slicing my face with a dull razor blade over and over again. Mine runs from my temple to the corner of my mouth. It was by far the worst I have ever experienced. Nothing worked including morphine and predisone. I can't take triptans due to side effects so I had to suffer through it for about 2 days before it started to let up a bit and then I still had a h/a for a few more days.

Anyway, it is just an idea and another option to peruse.....

Lulubel
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Old 06-14-2009, 09:13 AM   #22
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Join Date: Feb 2009
Location: Ontario, CA
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shurluk HB User
Re: Facial Migraines not Sinus Infection

I am sensitive to weather change (barometric pressure, wind...ect). I have this neurological condition that I pray often will be taken away from me. I have had this condition as far back as I can remember. I thought then it was allergies and sensitivity to Mold count. I drew to this conclusion by looking at the reported Mold Count in the weather section of the daily newspaper. We did not have PC’s or the WEB back then. I believed I had very sensitive sinus reaction to these “Allergic” attacks due to very bad sinus drainage. All my life I have had copious sinus drainage that caused sore throats and other issues.
This went on and on then about six years ago became more frequent. I was seemly getting what I thought to be sinus infection about every 3 months. When these perceived infections came on I would suffer with them and eventually go to the doctor where he would push around on my forehead and say it must be a sinus infection. I would take antibiotics which I noticed were always very slow in “helping”. I eventually got so bad and frequent my Doctor ordered a “CT Scan” of my sinus.
It was after this I found out that my sinus was perfectly clear. The ENT then told me I had “Facial Migraines”. I then was referred to the Neurology department and began a series of medication in the hope of decreasing my attacks. I experienced some life threatening side effects (Increased Heart Rate) and also they did not help decrease my attacks. They keep becoming more frequent as my sensitivity to weather changes increased.
I was on Effexor for a year and it was of no help and infect they continued to increase. I read that Effexor can do the opposite of what you want it to do sometimes. I read it can make Migraines worse at times. I went off Effexor cold turkey about a month ago. I was not pleasant but I did it.
So my “Facial Migraines” have been steadying increasing long before I began to use Vicodin to help have some kind of life. I got up an hour ago after being in bed with a migraine for about 14 hours. I could not stay alert for the “Lakers” game and thus missed it. Being forced to sleep through a pain episode is really not a bad thing. Me being in pain in my dreams beats having couscous pain all the time.
I have not taken any pain medication since getting up even though I feel poorly. I do not have a bad headache now nor do I most of the time. My head aches, sure enough, but my whole body is so weak and achy the head ache pain is overridden somewhat from my overall condition. I will take pain medication (2 Vicodin) to take the edge off the pain. It won’t go away but helps.

I am a migraine suffer who is not being helped by the normal medication offered by the neurological community for migraine. Most often they stay this is due to “MOH” if any pain medication is being used. They refuse to believe there are some migraine suffers who can’t be help by the prescription they hold so dear and effective. The nurse practitioner of neurology I was seeing was so against taking any pain medication ever it was ridicules. She must have been addicted, at one time in her life, to prescription pain medication. She was like a reformed smoker in regards to pain medication use. I truly feel sorry for her patients who are not being helped by her prescriptions and are forced to live in pain. I just want to state that MOH is not always the reason someone is not helped by other dugs. The medical community can be “open minded” to this concept if just a little effort is put forth. If there open minded they will take the time needed to determined if the pain medication use is the culprit or not. Most I believe at the moment just assume if you’re taking pain relievers that is your problem. They won’t except that it is really providing some relief from the real problem which is the Migraine.

 
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