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Old 03-31-2009, 08:26 AM   #1
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Severe chronic sinus problems....

Hello all, So happy to have found this forum.

I've been suffering from debilitating, chronic sinus problems for along time and it has gotten so bad that I'm willing to have the surgery to relieve it. I moved to NE Georgia & am looking for a good ENT w/in a few hours....Atlanta, Greeneville, SC, Asheville, NC....does anybody have a good recommmendation??? I recently recognized that I also have GERD/LPR and my throat is quite sore & swollen (thought for years it was my post nasal drip making my throat raw). I have read where they can be connected & I am looking for a GI for that also. I moved to a rural area/small town & just don't know where to begin looking, other than the phone book & I've done that already & gotten no help. Thank you so much for your advice.

 
Old 03-31-2009, 11:17 AM   #2
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Re: Severe chronic sinus problems....

Before you have the surgery, you should really focus on getting the Acid Reflux/LPR under control. It's possible that dealing with the reflux will help your sinus symptoms dramatically and you won't need the surgery (but may still need medication to manage your sinus issues).

You don't mention what kind of medical regimen you're on, but there are lots of things you can do to help mange chronic sinusitis and acid reflux - surgery should definitely be the last resort.

As for a doctor recommendation, your best bet would be checking the major teaching hospitals (like Emory in Atlanta) for a physician/faculty member who specializes in treating chronic sinusitis.

 
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Old 03-31-2009, 12:45 PM   #3
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more background on sinus/gerd problems

Thank you so much for your response. I have felt for many years sinus surgery wasn't the answer but after 10+ years of looking for answers, I am at my wits end & getting very desperate. You mentioned controlling the GERD may help the sinuses...I have just recently found they are related (found a book). I did not realize I had a GERD/LPR problem until just recently when it became MAJORLY symptomatic & now rules my life. Hate the idea of PPI's but feel I have no choice as I am concerned about damage to my throat since it has gotten so bad so quick. I have totally changed my diet over the years...now use rotation & candida diet as well as eliminating so many things I suspect could be problems....chicken, beef, pork, cow dairy, coffee, alcohol, tomatoes, sugar, etc. I haven't seen enough relief with what I've done. I will look at Emory for some input as to an ENT. Thank you so much & I wish you well.

 
Old 04-12-2009, 10:49 AM   #4
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Re: Severe chronic sinus problems....

UGGG, is all I can say today. On easter as well.
Have heard scary surgery stories. Trying to avoid it. Any other options out there? (I have done some similar diet changes but did not help).
--------

 
Old 04-12-2009, 10:56 AM   #5
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Re: Severe chronic sinus problems....

Many chronic conditions, including GERD/acid relux, and sinusitus are caused by a bacterial infection called borrelia burgdorferi..An ENT would not be the specialist to see to rule out/in borrelia burgdorferi! A Lyme Literate Medical Doctor would be your best bet.

As far as ticks being the only transmitter of this kind of bacteria...that may indeed be myth. I personally, wouldn't making any assumptions until I had done a lot of reading.

Bethsheba

 
Old 04-12-2009, 11:30 AM   #6
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Re: Severe chronic sinus problems....

There's actually not much medical evidence linking Borrelia Burgdorferi and GERD or chronic sinusitis without some other underlying condition (like Lyme Disease).

GERD is not caused by a bacterial infection, it is caused by a physical problem, namely an incompetent lower esophageal sphincter that allows stomach acid to reflux into the esophagus.

Sinusitis can be caused by a number of different bacterial infections, but borrelia burgdorferi is not one of the bacteria that is known to cause sinus infections. It more commonly invades the blood and tissues of infected organisms. About 75% of acute sinus infections are caused by Streptococcus pneumoniae, H. influenzae or Moraxella catarrhalis with fungal and anaerobic bacteria causing the remaining cases.

 
Old 04-13-2009, 06:34 AM   #7
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Re: Severe chronic sinus problems....

NY....

Irrigation worked wonders for me for years...washes pollens/molds out of the nose, helps with inflammation, etc. My swelling apparently has gotten so bad that I can't irrigate anymore, fluid gets stuck up there. Google it so you get the right mixture of salt. I, too, have heard the scary surgery stories, especially the empty nose condition, that is the area I have a cyst so I'm especially concerned.

Good luck!

 
Old 04-13-2009, 11:48 AM   #8
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Re: Severe chronic sinus problems....

I recently had sinus surgery 3/30. I am still in recovery process. Packing comes out tomorrow, but already breath much better. Dr. Paul Garlich in Gainesville is who I see. I have been a patient there for about 4 1/2 yrs. 770-536-4352.
Gatro doctors in Gainesville are also good. I also suffer from GERD and have history of a stomach ulcer.
I know surgery is a scary thing, but when your sinus cavities are swollen shut like mine, not much else will help. I have been doing rinses for 4 years still had recurrent infections.
Good Luck

 
Old 04-13-2009, 01:07 PM   #9
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Re: Severe chronic sinus problems....

Quote:
Originally Posted by gcsmithjr View Post
There's actually not much medical evidence linking Borrelia Burgdorferi and GERD or chronic sinusitis without some other underlying condition (like Lyme Disease)....
I would be the first to suggest an extensive search of the scientific and medical literature...but sometimes we just don't have the scientific research or proof for some of these things...sometimes we must simply look at cause and effect...especially when the disease has been "newly" discovered and we don't have alot of other options available until the necessary research is done.

I had acid reflux/gerd since I was a preteen over 40 years ago...I've taken most of the meds that posters on the Acid reflux board have taken, sometimes when they were considered "experimental". Nothing cured my problems and I simply took the acid, the coughing, the vomiting and the pain for granted. When I sought the advice of a sleep specialist for the sleep apnea that I suspect I've had for over 40 years, my specialist told me that he suspected apnea (in part because of my long term use of prescription meds for reflux/gerd) and that non med treatment for apnea may very well "cure" my acid reflux/GERD. This has been my experience. I have not taken meds for acid since being treated for apnea 5 years ago...nor have I had problem with acid, and "no", I don't eat bland foods but eat everything I want to including hot Indian/Mexican/Chinese cuisine. I would like to point out that there is little literature supporting these findings...and there are only theories as to why this occurs. Cause and effect.

This is true for Lyme disease as well...we know that the bacteria can invade all of the body systems, but we may not know how it goes about doing its damage...only that damage does occur and that antibiotics can stop, and in some cases reverse the damage. Cause and effect.

Quote:
Sinusitis can be caused by a number of different bacterial infections, but borrelia burgdorferi is not one of the bacteria that is known to cause sinus infections.....
That may or may not be the case, I really don't know. What I do know is that for whatever reason, some people who have chronic sinus infections, and who have been diagnosed with Lyme Disease respond to treatment for Lyme when other treatments have failed!

I'm not suggesting people, including doctors, should take uncalculated risks with medication, but I think it is safe to say a growing number cases suggest that antibiotic treatment for Lymesome specialists think that Lyme and its coinfections has been effective in treating many conditions that don't respond to traditional treatment.

Some specialists think that Lyme actually acounts for about half of all chronic illness...and I wouldn't be surprised if they were correct.

Bethsheba

Last edited by bethsheba; 04-13-2009 at 04:13 PM.

 
Old 04-16-2009, 07:40 PM   #10
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Re: Severe chronic sinus problems....

Hi everyone.
I thought I replied last night but now I don't see my post - hmm.
Thanks you to everyone who replied. Reading these thoughtfull replies actually helps a lot -
I do fear that sinus surgery is in my future but want to make sure I have explored all my options.
Am looking around and willing to try (almost!) anything.
Thanks again.
--------
NY

 
Old 05-06-2009, 09:16 PM   #11
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Re: Severe chronic sinus problems....

Hi. Posted this in a different thread but thought I'd re-post.
I am intrigued by a procedure called balloon SInuplasty - has anyone heard anything about it?

* removed *

hmmmmmmmmm

--------
NY

Last edited by hb-mod; 05-07-2009 at 03:51 AM. Reason: Please don't post links and instructions regarding commercial websites as per Posting Policy. Thanks.

 
Old 05-07-2009, 01:53 PM   #12
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Re: Severe chronic sinus problems....

Angelee12....Thank you for responding (sorry it took me so long). Thank you for your referral....I so appreciate that. I hope you are recovering well from your surgery. I, too, have GERD...the LPR kind. Went to the GI & got scoped but now have to go to an ENT for that. I've ready online that not all docs understand the whole LPR thing....do you know about Dr. Garlich? Do you suffer from the traditional kind of GERD? Thanks again for sharing your experience. I appreciate it. Hope your recovery is going well.

 
Old 05-11-2009, 02:07 PM   #13
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Re: Severe chronic sinus problems....

so you had the scan? and you need surgery? didn't see back in posts whether you had the scan. . for sure if you haven't that's next step. then ent will tell you if surgery and if surgery is right then either endoscopic or balloon sinuplasty. make sure they talk pros and cons of both. don't want ent biased to one surgical solution. i think surgery can be a great thing. don't be set against it entirely. if you're completely terrified of cutting then go for balloon treatment. no cuts

 
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