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Old 07-07-2009, 07:20 PM   #1
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Right sinus pressure, ear "fluttering", ear/eye numbness

Hi all!

About a year ago I had sudden onset severe dizziness, numbness on the right side of my face including my ear and my eye, sinus pressure, but no pain. The most annoying symptoms are a "fluttering" sensation in my ear and waking up with a wet ear every morning. Yuck.

Saw my GP and did a round of antibiotics and prednisone. No improvement - in fact, within an hour of taking the prednisone all of my symptoms would intensify. What ever this is it was annoyed.

Went to ENT and he did a hearing test and lost interest when there was no hearing loss and no sign of infection.

GP sent me for an MRI and to a neurologist.

Neurologist said MRI was clear and order an MRA and BAER test. Both clear.

So, they've ruled out the "scary" stuff - not MS, no tumors, no vascular issues. But the symptoms continue to come and go with no obvious triggers. Fortunately I have terrific insurance and an awesome boss that gives me the flexability to work from home most of the time.

After two really bad weeks, I got fed up and went to a different ENT. He was really nice, really listened. No real dx, but did agree that it's not any of the scary things, nor is it BPVV etc, likely Meniere's or Labrythitis, but ordered a sinus CT and Audiogram. He said that he doesn't think the dizziness is related to the sinus pressure, etc, but I still think it might be.

I have my follow appt. with the ENT on Monday 7/13. If you have any ideas or suggestions on things to ask about at the follow up, please post! I feel like such a loser having this non-visible issue that is really interfering with my life.

Thanks!

Mb

 
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Old 07-10-2009, 08:46 AM   #2
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Unhappy Re: Right sinus pressure, ear "fluttering", ear/eye numbness

Please - does anyone have any ideas or suggestions on my symptoms? Any advise on things to ask the ENT? I'm so miserable!

 
Old 07-10-2009, 07:49 PM   #3
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VA_girl HB User
Re: Right sinus pressure, ear "fluttering", ear/eye numbness

Sounds like it mimics some diff types of TMJ symptons. Have any problems with your jaw or teeth grinding?

 
Old 07-10-2009, 11:46 PM   #4
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Location: Raleigh
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Doina HB User
Re: Right sinus pressure, ear "fluttering", ear/eye numbness

I have the same symtomps; I believe it's TMJ, muscular; I have no good specialist to talke care of it. the ear/eye symptoms are maddening; ask ENT about ear pressure test

 
Old 07-15-2009, 08:22 AM   #5
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Join Date: Feb 2007
Location: Fairfax, VA
Posts: 24
Sverige HB User
Re: Right sinus pressure, ear "fluttering", ear/eye numbness

Thanks guys! I've never had any TMJ issues but will look into it.

I had an ECOG test today ..... is that the pressure test that you mention? They put special ear plugs in my ears, electrodes on my head and hooked me to a computer. Had to lie still in a dark room while load, annoying clicking sounds were in my ears for about 30 minutes.

Should have the results by Monday - but I'm guessing it will be the usual "everything looks fine". Grrrrr.

 
Old 07-15-2009, 08:35 AM   #6
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Join Date: Jul 2008
Location: toronto
Posts: 122
xtine04 HB User
Re: Right sinus pressure, ear "fluttering", ear/eye numbness

Quote:
Originally Posted by Sverige View Post
Hi all!

About a year ago I had sudden onset severe dizziness, numbness on the right side of my face including my ear and my eye, sinus pressure, but no pain. The most annoying symptoms are a "fluttering" sensation in my ear and waking up with a wet ear every morning. Yuck.

Saw my GP and did a round of antibiotics and prednisone. No improvement - in fact, within an hour of taking the prednisone all of my symptoms would intensify. What ever this is it was annoyed.

Went to ENT and he did a hearing test and lost interest when there was no hearing loss and no sign of infection.

GP sent me for an MRI and to a neurologist.

Neurologist said MRI was clear and order an MRA and BAER test. Both clear.

So, they've ruled out the "scary" stuff - not MS, no tumors, no vascular issues. But the symptoms continue to come and go with no obvious triggers. Fortunately I have terrific insurance and an awesome boss that gives me the flexability to work from home most of the time.

After two really bad weeks, I got fed up and went to a different ENT. He was really nice, really listened. No real dx, but did agree that it's not any of the scary things, nor is it BPVV etc, likely Meniere's or Labrythitis, but ordered a sinus CT and Audiogram. He said that he doesn't think the dizziness is related to the sinus pressure, etc, but I still think it might be.

I have my follow appt. with the ENT on Monday 7/13. If you have any ideas or suggestions on things to ask about at the follow up, please post! I feel like such a loser having this non-visible issue that is really interfering with my life.

Thanks!

Mb
have you looked into the symptoms of a perilymph fistula?

 
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