It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Sinus Problems Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 07-16-2011, 01:04 PM   #1
Newbie
(male)
 
Join Date: Jul 2011
Location: Valencia, CA USA
Posts: 2
digiman HB User
New to board: Need Chronic Sinus Infections Help!

Hi,
I'm new to the board and and DESPERATE for help! I'm a 47 year old male in otherwise healthy condition outside of the sinus issues. I have had serious sinus issues for about the last 16 years. It started about 1995 when I started to have the begining of "moderate" chronic sinus pressure symptoms. I was 31 years old at the time and had never had any sinus symptoms whatsoever until that time. There was also nothing that changed climatically or environmentally that could have contributed to those symptoms either. At that time I went to an ENT and after looking at CT scans the doctor diagnosed me with having a deviated septum. The doctor suggested I get surgery to correct the deviation (septoplasty) and while he was in there he also recommended trimming all the turbinates just for good measure. Without getting a second opinion, I went forward with the surgury. FROM THAT POINT ON MY LIFE HAS CHANGED FOREVER....

It was an outpatient procedure and as soon as I woke up in the recovery room, I knew I was in trouble. I was in the worst pain of my life! I had reconstructive shoulder surgery before and I thought that was as painful a surgery as I could have, but this was worse. There was packing to control the bleeding, but the packing was actually pushing whatever was previously obstructed even deeper. The doctor gave me some valium and told me to give it a couple of days. Well after a few days the pain was still there and for the most part it has been here ever since that surgery. Essentiallly, the pain that I am experiencing is feels like there is a "bubble" or pocket of tissue that mucuos keeps building up in and the more that pocket fills, the more pressure and pain I feel. It's located on the right side of my nose, between my septum and just underneath my right eye. The pain never goes away, its just more severe on some days then others depending on how much mucous is in the "bubble" that day. In addition, when I attempt to do things like nasal rinses, it's gets even worse to the point where the pain feels like something is going to explode. To make matters worse, this also causes SINUSES INFECTIONS ABOUT 2 TIMES EVERY MONTH. This has been the case for the last 15 years. The only thing that works is Azythromycin (Z-Pack). I've had to take this regulary for the last year because it's the only thing that "controls" the symptoms. And it only controls them for a few days. Since the blockage is still there, as soon as the pocket fills with mucous, another sinus infection ensues. And that cycle happens every two weeks.

Since the first surgery I have seen over a dozen or more ENT doctors and they can't seem to find anything that would be causing the blockage. The reason they can't see anything is because the first doctor pretty much removed everything and what they comment on is that there really isn't anything left there that could cause the obstruction. I KNOW THERE IS SOME KIND OF PHYSICAL OBSTRUCTION BECAUSE I NOT ONLY FEEL IT, BUT I CAN ALSO HEAR THE POPPING OF THE BUBBLE OF THE MUCOUS AS IT ATTEMPTS TO FLOW THROUGH THE TINY PASSAGE. In addition to ENT specialists, I've also seen neurologists for migraines, psychologists for depression, dentists for tooth releated issues, and finally neuro-opthomologists for eye/nerve issues and they have all not been able to find anything. Like I said, I KNOW its a physical obstruction (ala concha bullosa) that for whatever reason isn't showing up in CT Scans. At any rate, I NEED HELP! It is affecting every part of my life. Because of this I'm about to lose my job, my family, and pretty much everything I value in my life because I can't cope any longer with the symptoms that seem to only be getting worse.

Last edited by digiman; 07-16-2011 at 01:08 PM.

 
Sponsors Lightbulb
   
Old 07-19-2011, 09:32 AM   #2
Senior Veteran
(male)
 
Join Date: Nov 2007
Location: Cleveland
Posts: 1,263
gcsjr HB Usergcsjr HB Usergcsjr HB Usergcsjr HB Usergcsjr HB Usergcsjr HB Usergcsjr HB Usergcsjr HB Usergcsjr HB User
Re: New to board: Need Chronic Sinus Infections Help!

Quote:
Originally Posted by digiman View Post
Hi,
Since the first surgery I have seen over a dozen or more ENT doctors and they can't seem to find anything that would be causing the blockage. The reason they can't see anything is because the first doctor pretty much removed everything and what they comment on is that there really isn't anything left there that could cause the obstruction. I KNOW THERE IS SOME KIND OF PHYSICAL OBSTRUCTION BECAUSE I NOT ONLY FEEL IT, BUT I CAN ALSO HEAR THE POPPING OF THE BUBBLE OF THE MUCOUS AS IT ATTEMPTS TO FLOW THROUGH THE TINY PASSAGE.
If the ENTs you've seen can't find any obstruction it's extremely unlikely that a physical obstruction is causing your problem (it would be very easy for them to see any type of physical obstruction).

It's much more likely that what you're experiencing is a result of the first doctor removing "everything" which can cause more problems than it solves.

Removing a significant amount of tissue can cause nerve damage, change the natural flow of mucus in your nose which leads to mucus recirculation and recurring infections, and can change the physical sensation you experience when breathing air through your nose.

Some people refer to these symptoms as "Empty Nose Syndrome" (which you'll find lots about online if you're interested in researching it further). The number of ENTs who fully acknowledge the impact of removing too much tissue is fairly small, and the number of ENTs who actively treat the associated symptoms is also fairly small.

I would recommend that you contact Dr. Steven Houser (probably the leading expert on removing too much tissue and ENS) at MetroHealth Medical Center in Cleveland, OH and ask him if he would recommend a physician in your area who might be able to help you get to the bottom of your situation.

Last edited by gcsjr; 07-20-2011 at 02:30 AM.

 
Old 07-19-2011, 11:19 PM   #3
Newbie
(male)
 
Join Date: Jul 2011
Location: Valencia, CA USA
Posts: 2
digiman HB User
Re: New to board: Need Chronic Sinus Infections Help!

Thanks for the suggestion. After doing some research of others who have been diagnosed with ENS, I really think you might be on to something here.

I will contact a doctor and then post back after I've had a chance to see him.

THANKS FOR YOUR HELP ON THIS! I REALLY APPRECIATE YOUR CONCERN AND SUPPORT!

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
It has now been 10 years since I suffered Chronic Multiple Annual Sinus Infections! Machaon Sinus Problems 3 07-17-2010 03:00 AM
Does anyone suffer REALLY bad chronic sinus infections? This is MISERABLE. r/o pls Abrie79 Sinus Problems 7 05-24-2010 08:16 PM
Please help... 5 1/2 yr old child with allergies & chronic sinus infections jmhky Sinus Problems 6 05-12-2009 05:07 PM
I feel worse not better, chronic sinusitis:-( Essica Sinus Problems 67 01-26-2009 08:11 PM
Chronic sinusitis and need advice Crystalgray Sinus Problems 9 01-30-2008 10:11 AM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



gcsjr (25), Machaon (12), dzway2 (6), love63367 (5), Pastafarian (4), ladybud (4), adpace (3), ChiJenn (3), solofelix (3), quincy (2)

Site Wide Totals

teteri66 (1165), MSJayhawk (1000), Apollo123 (898), Titchou (833), janewhite1 (823), Gabriel (758), ladybud (747), sammy64 (668), midwest1 (665), BlueSkies14 (610)



All times are GMT -7. The time now is 12:18 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!