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Old 01-01-2013, 03:39 AM   #1
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Not sinus infection after all???I'm not convinced...

So I finally saw a different ENT consultant yesterday, after having what I believed to be a constant sinus infection for 2 months ( extreme fatigue, breathlessness, pain between the eyes, then over eyebrows and cheekbones. Constant pain for last 6 months and discoloured yukky discharge for 2 months).

First ENT I saw in August prescribed flixonase drops and discussed surgery to correct deviated septum & conch bullosa, if sinus issues continued.

This ENT consultant I saw yesterday said no, I haven't had sinus infection for last two months because the 5 antibiotics I've tried haven't worked so it can't be an infection. And no, sinus infection doesn't cause headaches or breathlessness or fatigue...he kept referring back to the CT scan I had in July saying there is no sinus infection...I pointed out that the CT scan I had in July is a bit out of date now! So he kept saying there is no point doing another CT scan, no point doing surgery as it won't get rid of my headache cos my sinus isn't the problem.

So I pointed out I never had this amount of disgusting mucus before, he just said it's allergies! (despite having a filtrete air filter, no carpets etc. wearing a vogmask 90% of the time now). He wants my GP to refer me to a neurologist as he is insistant it isn't sinus related!

I think he realised I wasn't happy with what he was saying as he said I could have a referral to another ENT for a second opinion, which I agreed to, even though the other ENT is at a hospital much further away.

Any thoughts? I'm totally confused now. This ENT just seemed to think I was after surgery, which I wasn't....

oh, forgot to say...this ENT said it was a variant of migraine! I didn't think migraine lasted 24/7 every day for 6 months. And surely migraine doesn't cause your nose to produce green gunk, and the pain wouldn't ease up after saline flushing in a migraine...or would it?

And he also said you don't get mucus in your sinus only the turbinate area of your nose!

Last edited by Nightwarrior; 01-01-2013 at 03:45 AM. Reason: addition & spelling

 
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Old 01-01-2013, 11:32 AM   #2
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Re: Not sinus infection after all???I'm not convinced...

I'm frustrated for you. I'm no doctor.....but it seems like this ENT doesn't know what he's talking about re: sinus problems don't cause headaches and you can't get mucus in your sinuses. Did he see the second CT scan you had that showed pathology?

Have you tried an elimination diet, just out of curiosity? Explored candida or gluten? Are you still doing the peroxide flushing and, if so, is it still helping?

I'm at the tailend of my Avelox course and it hasn't done a thing for me. Just waiting now for my last ct scan results.

 
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Old 01-01-2013, 12:16 PM   #3
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Re: Not sinus infection after all???I'm not convinced...

I told him about the second scan from October 31st and the fact that 3 GPs had said that I had sinus infection from it. he totally dismissed it as it was primarily to check my brain, and he said it wasn't of the sinuses even though it showed the sinuses. Then he totally dismissed what 3 different GPs had said and told me they didn't know what they were talking about and "that's why I'm a specialist"

I'm back on the elimination diet (had a break over Christmas as I couldn't turn down homemade Christmas pudding & brandy butter!) I even got a gluten free cookbook as a present! I didn't notice any difference when I wasn't eating gluten/dairy but will continue just in case it takes a while.

What I would have said to ENT specialist, (if he had let me get a word in) was that the original symptoms of dizzyness/unbalanced feeling did disappear with continued antibiotics, and also my loss of hearing/sense of taste and smell had also returned. If it was migraine, antibiotics wouldn't have made any difference at all, but they did help a bit. All week, my sinus passages have been open ( I can tell by how much saline I can get in there!) but over the last couple of days I have become more congested (my parents can tell the difference in the way I sound) and today they have closed up again, as I can't breathe in freely through my nose, and headache has got worse again! I even contemplated starting afrin again, but decided against it!

I am now doing peroxide flooding every 3 days, as I was concerned that I may actually be increasing inflammation by doing it every day. It doesn't seem to make any difference to the amount of mucus being produced, so not sure whether to continue or not. I'm only doing it to hopefully keep any bacteria from spreading/returning.

I'm now trying guaifenesin to see if that helps reduce the mucus...will try anything now!

I've read up a bit about migraine, and it seems that the pain can cause nasal congestion & discharge but the clear difference between constant chronic migraine and chronic sinus headache is that chronic constant migraine does not cause green/yellow mucus discharge! Even read up a bit on TMJ (clutching at straws now!)

I feel as though I am just going to get bounced back from Neurology to ENT to GP...already had nearly 2 months off work, and still no-where near well enough to return to work..and no light at the end of the tunnel! I think if I don't get anywhere soon, I'm going to write a letter to head ENT specialist (if I don't get to see him) detailing all my symptoms and what I've been told.

Hopefully your latest CT scan will show something conclusive...nothing worse than being in limbo.

 
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Old 01-02-2013, 11:32 AM   #4
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Re: Not sinus infection after all???I'm not convinced...

Quote:
Originally Posted by Nightwarrior View Post
So I finally saw a different ENT consultant yesterday, after having what I believed to be a constant sinus infection for 2 months ( extreme fatigue, breathlessness, pain between the eyes, then over eyebrows and cheekbones. Constant pain for last 6 months and discoloured yukky discharge for 2 months).
Sure seems to indicate sinus infection(s) doesn't it?

Quote:
First ENT I saw in August prescribed flixonase drops and discussed surgery to correct deviated septum & conch bullosa, if sinus issues continued.
I would only consider sinus surgery as a last resort, and only if I was sure about the competency of the surgeon, and absolute proof that the surgery would make my sinus disease better and not worse.



Quote:
This ENT consultant I saw yesterday said no, I haven't had sinus infection for last two months because the 5 antibiotics I've tried haven't worked so it can't be an infection.
Absolute nonsense and rubbish, IMHO!

Antibiotics travel through the blood stream. There is almost no blood supply within the sinus cavity membranes. If, indeed, your sinus infection are in the sinus cavities, you can take antibiotics until the cows come home, and they will have little effect.

Quote:
And no, sinus infection doesn't cause headaches or breathlessness or fatigue...
Good grief! Ask any of the many of us, who have had sinus infections, who have suffered from headaches and/or sob and/or fatigue. When there is a sinus infection, or any other attack within our body, there is an outpouring of all kinds of chemicals (hormones) that can all kinds of nasty, negative effects, depending upon our individual metabolisms.

Quote:
So I pointed out I never had this amount of disgusting mucus before, he just said it's allergies! (despite having a filtrete air filter, no carpets etc. wearing a vogmask 90% of the time now).
Allergies and/or irritants within the sinuses or nasal passages or turbinates could be a possibility. Anything that irritates the sinus membranes, including infection, allergy, or crud, can cause all kinds of nasty sinus discharge.

Someone can be allergic to almost anything! One can be allergic to chemical outgasing in one's home or at work, or what one eats or drinks, or what one touches, or pollen, or pollutants in the air... etc.

Quote:
And he also said you don't get mucus in your sinus only the turbinate area of your nose!
Makes me wonder how this guy ever got through medical school!?
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Old 01-02-2013, 11:55 AM   #5
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Re: Not sinus infection after all???I'm not convinced...

Well, first thing this morning my hospital phoned me to give me an appointment to see another ENT specialist at another hospital further away and amazingly it is only next week (the 9th!) . I am praying that I get to see the lead ENT consultant.

I also phoned my GP this morning, and got an appointment this afternoon. After ranting for 10-15 minutes to my wonderful GP who actually listened to me, and laughed occasionally (not at me but at the obvious incompetency of the ENT "specialist" I saw) he told me he knows the Lead ENT consultant at the other hospital and he has got a good reputation (son of a leading Professor ) and that I should see him for a second opinion as my GP pretty much said it is ludicrous that a migraine would last 6 months and cause green discharge, along with all the other symptoms that are classic sinus issues. And my GP said that even my original CT scan showed sinus issues......

So will update you when I get to see the next ENT

p.s. I am going to be really strict with my diet now, as I ate chocolate and soup with stilton in it over last 2 days and my sinus passage-ways pretty much closed right up!

I'm pretty sure my actual sinuses aren't inflamed (as in raw) as I did a couple of peroxide flushings yesterday evening, and I had very little pain or reaction to the peroxide, and the flixonase drops didn't hurt when I did them before I went to bed ( used to sting like hell when I first started peroxide flooding 2 months ago!)

Last edited by Nightwarrior; 01-02-2013 at 11:56 AM. Reason: spelling

 
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Old 01-02-2013, 12:03 PM   #6
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Re: Not sinus infection after all???I'm not convinced...

Oh, I know I'm allergic to almost everything...cats, dust, housedust mite, pollen, feather, horses, mould etc. etc. But in all my life I have never had anything like this. I always get wheezy and my lungs tighten. I've had asthma and numerous lung infections as a child. Even with Telfast antihistamine, my lungs started up as soon as I took my mask off at my mums to eat Christmas dinner (she has a cat and dog). Normally I can't last more than a few hours at my mum's house but with the mask on I managed a whole day!

Maybe allergies are a contributing factor, but there isn't anything more I can do to reduce the airborne allergens apart from getting an oxygen space suit!

 
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Old 01-02-2013, 06:04 PM   #7
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Re: Not sinus infection after all???I'm not convinced...

Sorry bud, but you've got allergies bad. Sometimes nothing works against them short of moving away or immunotherapy. You need to find out exactly what you're allergic to, start taking meds that work, start immunotherapy, and above all, get away from whatever it is that's causing this reaction.

 
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