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Sjögren's Syndrome Message Board
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Old 02-06-2006, 06:51 AM   #1
ljs ljs is offline
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Burning tongue syndrome?

Two years ago, I had dental surgery with result that during the post-op period I lost my sense of taste, my eyes went dry, some mouth dryness...eyes had been gradually getting dryer anyway. I was 38 at the time. Sense of taste did come back (mainly caused by mouthwash used post-op) but my tongue since then has seemed easily "bruised" and will feel like I burned it quite often. That sort of waxed and waned. Several months later, checked it out with GP-later found I have high ANA (1280) based on two tests 3 months apart. Referred to specialist...said I don't have SS or lupus...he did the tear test and my eyes watered quite easily. But generally they tend to be dry.

After that visit last April, I decided to let it go for the moment. If it was either it would show further down the road. Symptoms were mostly annoying and other family health was more urgent. Problems have come and gone...

So lately I have noticed a problem with that burned tongue feeling...much worse than usual. Have noticed it gets worse after drinking soft drinks, eating salty foods, among others. Just noticed I am suddenly getting a very dry mouth, worse than it's been for awhile. My eyes have been extremely dry and gritty lately too. Haven't seen my GP but need to see her soon.

I am just wondering if others have the tongue problems?

It was intitially suggested that I have lupus due to the high ANA but my symptoms tend to be more like SS although I do have some lupus symptoms too. I can't help thinking a high ANA must mean something autoimmune, especially as it wasn't a one off result. I'm hoping to see GP this week about this and other stuff bothering me. I'm also having a lot of short term memory problems...very short term, some of them. This has already been occurring with age but seems much worse right now than ever.

 
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Old 02-07-2006, 11:54 PM   #2
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Re: Burning tongue syndrome?

Sometimes the confusion over all this stuff takes its toll. Do you sleep OK?
My Doctor told me that fatigue was probably causing my brain fog and memory loss. He also put me on hormone replacement. I am improving now and even exercising again. I did have tongue problems for a while. My tongue was red and burning. My Mom read an artricle describing a "red beefy tongue " as the result of a B-12 deficiency. As I remember it did go away after taking b-complex and extra B-12. Hope this info. hasn't confused you more. Have had ulcerative colitus & sjogrens for 10 years. I'm now 58. I still have not learned to be a good, uncomplaining patient, so vent all you want I understand.

 
Old 09-11-2006, 04:34 PM   #3
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iggy9999 HB User
Lightbulb Re: Burning tongue syndrome?

I WANTED TOO REPLY TO BURNING TONGUE, THIS HAS BEEN GOING ON FOR SIX MONTHS, IAM SO GLAD TO SEE YOU COULD ANSWERmy question.
i will get the b-complex andb12. thanks so much!!!!!!!!!!!!!

iggy9999

 
Old 10-27-2006, 07:55 AM   #4
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Re: Burning tongue syndrome?

Hi,
I have that almost constant. Mine is thrush, and it is very painful. And yes certain foods can burn. I have sjögren's, and my mouth is always dry. I have found doctors do not like passing out medicine for thrush often. I found an over the counter homeopathic medication that helps a lot. It is called Azo yeast, and can be found in most pharmacies.

Lisa

 
Old 11-30-2006, 10:58 AM   #5
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summerblue HB User
Re: Burning tongue syndrome?

Burning tongue syndrome, this is what I think I have. I have had it now a little over a year. When I first noticed it I thought I had burn my tounge but couldn't remember when. It got worse as the days went on, on a scale of 1-10 with ten being the worse, I was at a 10. Now I still have a somewhat burned feeling but not so intense. What I do have now is a metallic taste in my mouth and just a feeling that my mouth isn't feeling normal. The corners of my lips have been cracked and peeling, mostly one side, and that lasted for awhile too. Right now the cracked lips have gone away, I hope for good. This is really a terrible annoying thing, I searched and found info on it, Try that if you haven't. Good luck to you.

 
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