Hello. I have been suffering with mysterious symptoms for 5 years...immediately after the birth of my daughter. So far no diagnosis. For awhile they thought I had MS, because I do have some lesions on the brain, but then they decided it wasn't MS. I have had joint pain, infections, IBS, proteinuria, rapid, irregular heartbeat, muscle spasms, tingling, etc. My neuro suspects an autoimmune disease, but doesn't know which one.
It wasn't until a trip to the dentist last week, did I realize I have problems with my mouth and eyes. The dentist pointed out swollen parotid glands, which must have been pretty swollen as he called the hygentist over to come "look at this!" After I got home, I researched swollen parotid glands, and saw "Sjogren's" which I didn't know what it was.
Then I realized I have had mouth and eye symptoms, which seemed so minor in comparison with my other symptoms, that I've never mentioned them to the doc. I have had to give up eating certain foods because my jaw hurts to chew them (mainly crunch foods). Also, some foods seem to get "stuck" in my throat and I have to get a drink fast.
And, as for my eyes, I have to rub them a lot because they feel gritty and I have had eye pain in the past. I also get a lot of mucous in my eyes that interferes with seeing, and I get occasional blurry vision.
But for my main question, if your eyes are dry, can they get excessively watery in the wind? One thing that has bothered me a lot in the last couple of years, is if I am outside and it is even somewhat windy, my eyes water terribly and it is embarrassing to try to talk to someone when this is happening, because it is so excessive and then I get tons of mucous in the corners of my eyes. Its hard to look at someone when this is happening and hard to explain.
But when I am inside or it isn't windy, I think my eyes are dry. Does that happen to you?
I also have recently developed eczema in various places and vestibulitis on my vulva. Any thoughts on anything I've mentioned? I think my next step will be to get into a rheumatologist...I've never seen one before. Or possibly an opthamologist?
Hi, my eyes do frequently water in the wind. It's reflex tearing, which isn't of the same quality tears as normal tears. Your other symptoms sound like they could very well fit under Sjogren's. You probably would want to see a rheumatologist or immunologist with special knowledge of autoimmune and connective tissue diseases to be evaluated. Sjogren's does have some neurological symptoms in some patients too.
I've also developed eczema, which hasn't been a problem until I reached my forties. I've been diagnosed but didn't make that connection until recently.
Thank you for your reply. I do plan to schedule an appointment with a rheumy and an opthamologist, as I've already met my deductible this year, so I might as well go for it now. I just dont' know anything about any of them around here, but I'll pick one out of phone book. It doesn't appear that there are many around here.
I haven't noticed but I will have episodes of my eyes and nose running if I bend over...it's weird, like a faucet I thought no longer exited suddenly turned on. I am not outside much as I am pretty sick, but I'll pay attention.
I am recently diagnosed after 6 yrs and 13 specialists. Triggered by a bad case of meningitis and encephalitis. I also have a very severe case of Fibro and horrible fatigue. Upon diagnosis, which was done via biopsy but triggered by my severe mouth and eye dryness and nueropathy in my feet, legs, arms and hands. Since the diagnosis I have had pneumonia and my dr believes the Sjogren's in tap-dancing in my lungs. I am able to breathe, but very short of breath, I assume becuase drying is occurring in my lungs. Has anyone gone through this? Have any pearls of wisdom?
i get the dry eyes alot and watery in the wind but i had the ana antibodies done and they came back satisfatory i think my doc was testing for lupus aswell is this conclusive and what test is there for lupus and sjorgans thanks katxxxxxxxxxxxxxx