Re: Is anyone else able to work full time?
Thank you for your reply about heart defects! It helped me to ask appropriate questions of my doctor and get information specific to me (I was curious because my own heart has been affected by Sjogrens and was wondering not only if I got that from my parents somehow, but also what that was going to mean for my heart issues going forward). Alas that was not the case (well, I probably still got the Sjogrens from my dad as he has similar issues) but the heart defects caused by Sjogrens apparently become obvious (and urgent) in the first year of life. Given my age (44), I'd say I am a whee bit out of the danger zone there. ; )
I am having a difficult time finding much else on heart issues with Sjogrens so perhaps that is just a mere coincidence for me. I would love to hear if anyone else with Sjogrens has heart issues.
Oh and to answer your original question, I am not able to work either... not full-time or part-time. I was a corporate executive before this (you know the drill... 70 hour work weeks, etc.) but now the fatigue, heart issues and extreme double vision (all of the extraglandular issues really) prevent me from counting on any sort of regular shedule. Some days I can get by for a good 4 or 5 hours if I rest lots, but some days I am just lucky to be breathing. I am trying everything I can to improve my condition (taking the suggested medications, supplementing with alternative therapies, working out as much as possible to keep my muscles strong, doing yoga, meditating, going to church, getting a little sunlight every day, eating healthy, getting my electrolytes in, keeping up on the health boards for suggestions from veterans here, you name it) but it is still early (recent diagnosis). I don't even know how one with an autoimmune disease can find the strength or focus to develop (or get the training for) a home based job!
Last edited by patriciaf; 08-05-2008 at 12:15 AM.