Re: Natural Remedies for Extraglandular Aspects of Sjogrens?
Hi Patricia-It's me again --and I am glad you are out there cause I too need to talk about this stuff having just been diagnosed with secondary sjogren's , they are callling it secondary because I have another autoimmune disease hashimoto's thyroiditis.
First,--about your thyroid (ooops that was your other post, --but , anyway) what is your tsh level? Some docs will say you are ok if within tsh range that may go up to 5.3 or so. But , apparently most of the population is around 1 or 1.5 and anything much over 2.5 may be hypothyroid. So look at your latest labs and see where your tsh is.
I am so glad to hear you say you have eyes and mouth moisture under control. But please tell me how you did this
what is your regimen for your eyes
what is your regimen for your mouth
I take omega 3 oil daily. I use nordic naturals , lemon flavored. This product is from Norway and touted to be one of the purest--that is toxins in fish oil removed in processing. I use 2 teaspons a day. I like the liquid better than the pill because I don't have to wonder if I am getting the oil because those capsules are thick and have to dissolve in your intestines.
I also use evening primrose oil also from nordic naturals-take two a day-they are small pills.My doctors pcp and optha have both said use omega 3.My eyes are soooo dry and skin too -so I guess I might be worse offf without the oils
For my eyes--lower ducts plugged, daily use of restasis 2 times, refresh plus throughout the day, refresh pm ointment in eyes at night, in am cleanse eye area with occusoft pads to get ointment goop off of my eyes.
For my mouth-biotene toothpaste, prevident 5000 for evening brushing, ACT flouride mouth wash at night.
My skin esp my face is so sensitive and dry and irritable. I use cetaphil gentle lotion cleanser, then cortaid 1% cream, or cetaphil cream.
What do you mean about dry lungs , heart, and digestion???What else is happening?On my x rays they say there is some scarring in my lower lungs. I wonder what that is.There is so much going on for me healthwise now that they found a 3cm tumor in my neck , I am waiting for a second opinion with another surgeon but it has been stated possibly malignant and surgey needs to happen. This may be related to my thyroid disease or not-docs haven't been all that clear with me.
But, I would love to hear what has worked for your eyes and mouth. And, I think omega 3 oil and evening primrose oil would be good for you.