Originally Posted by nussy22
I don't feel qualified to answer your question, but it sounds like more of an allergy to me than SjS.
I am a male recently Dx'ed with SjS and the way it presented for me was a extremely dry mouth resulting in a loss of three teeth in 9 months. Bone loss and gums receeding. No pain, pre se, just dry, dry, dry.
I was seronegative on the blood tests, but an X-ray of my hands showed RA.
The rheumy said SjS was almost a sure thing, but without a biopsy, he wouldn't publish the fact, however he is treating me for it.
I wouldn't rule out SjS in your case, but it doesn't sound quite right to me. A parotid gland biopsy is generally the clincher, but sometimes not.
How are your eyes? Dry?
How about your voice and swallowing food (dry bread, crackers) without water?
Are you greatly fatigued?
SjS affects people quite differently. Keep and open mind and seek a doctor willing to work with you.
Best of luck, my friend.
A coarse voice do you mean? I haven't noticed any changes off the top off my head but I could ask others.
I wouldn't say my eyes are dry or anything, not to the point where I use eyedrops. when I used to smoke marijuana my eyes would get extremley bloodshot moreso then the average person. To the point where I had to put visine in before because I couldn't do it aftewards.
I don't really eat bread or crackers but for as long as I can remember whenever eating anything dry I gotta chew then drink some water then swallow. I'm into bodybuilding/weightlifting havent althogh done much in weeks. I tend to eat alot and I gag quite often and having to swallow with water, and I wouldn't gain any weight when doing this, I guess with my weights/cadrio I had a fast metabolism. Some times I would be forcing the food down to get enough calories others I wouldn't have been full
Lately I've been much more fatigued then usual but I think I may have contracted some type of virus from this girl,I've been having alot of weird symptoms that all fall under the Virus family... Really sore muscles, joint pain, fatigue, acne like rash, a bit of soreathroat, headache, maliaise, extreme fatigue, mouth ulcers(different then the swollen salivary glands) These symptoms came after my skin irritation and the swollen salivary glands.
Benadryl seems to give me a bit of temporary less irritation( burning less or goes away and the itching lessens or stops)
.This makes me lean more towards the Allergy cause/effect. I stopped my antibiotics around the time that I got my most recent 2 fillings.
My aunt also had MS which I'm not sure has anything to do with other AutoImmune disorders (not sure if theres a genetic Link)
Thanks for the Reply.
Would benadryl give any relief of my symptoms if there were soley related to SJS, or could there be an overlap of issues here?
I mentioned SJS to this temporary doc he seemed to dismiss it quickly, and he didn't think what I had was allergy related. I also got some Dental material tested with VEGA testing and I showed reactivity to almost all of the Composites, Especially Heliomolar the kind that leaks flouride out, which has been shown to cause perioral dermatitis