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Old 08-27-2008, 04:32 PM   #1
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marys1358 HB User
Sjogren's and Dental

Hi Everyone,

I've been havinh alot of problems with my mouth lately and was wondering if this has happened to anyone else.I had a tooth that was real loose and was playing with my tongue and a week later I was eating a cinnamon roll and the whole tooth feel out root EVERYTHING but no blood needless to say right on my 50th b-day.So what else can I look forward to after 50????
So now this last week I've been having pain on the bottom teeth but more with the nerves going into my jaw so I went to the dentist today and after the xrays he says that the bones in my mouth are deteriorating and now they have to pull 3 teeth.So has this happened to anyone else is this a sign of sjorgren's?
Some information the dentist did say was CREST PRO HEALTH is the best mouth wash for us and also trident gum has XYLITOL which is good for your gums and also keeps your mouth moist.But he did say NOT to use anything with ALCOHOL because that causes more dryness.So would love any info. about your teeth and sjogern's or past experiences anyone else has had.

Thanks again,
Mary

 
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Old 08-27-2008, 06:12 PM   #2
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puppybreath HB User
Re: Sjogren's and Dental

Hi Mary, I'm sorry you're having teeth problems. I haven't been diagnosed with Sjogrens, but I suspect I have it. My teeth have been bad also. I have periodontal disease and have had to have surgery on my gums in the past. I have also lost 3 teeth, but not in the same way you did. They got loose, started to hurt so I had them pulled. They were back molars. My mouth is always dry. I hope you can find a way to stay happy and not worry too much about your teeth. Best of wishes to you!

 
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Old 03-18-2009, 04:00 PM   #3
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Drain Bamaged HB User
Re: Sjogren's and Dental

Hey-lo & Hi Mary.

I do hope this post finds that you are doing better.

I am new to this Board and I popped into the Sjogrens Thread as I've had this for over 22 yrs. as a second-ary ~ oh, who knows it could be the 18th-ary to the other wonderful mind boogeling disfunctions of my person. As far as my teeth, yes, I had to have all of them that were left approx. 20 removed 5 yrs. ago and I now have full upper and lower dentures...No more sensitive/painful or falling out of mouth teeth. ( I jus luv this lil smilie )

I resently found out, the distruction of the tooth/teeth from Sjogrens is due to the ( Ph factor ) of the saliva that our glands struggle to produce.

Meanwhile, I was recalling the sassies many a dentist would say. " Wow, you've helped someone put thier kids through college." of course the lecture on how to brush the teeth... Yeah, my goal in my life was to earn dentures...
I am thankful for the Dentures. As the one big action I missed while awaiting the Dentures was my inability to smile.

Now, I can !!!

My mouth still is quite dry. I carry H2o with me all the time. As my tongue and mouth become quite dry. Believe it or not, even when I'm not talking......hahahahahaa ~ I do rinse with a moisturizing mouth wash a few times a day with dentures out or in. My average daily intake of H2o is no less than a 1/2 gallon.

Here's sending you bunches of : and if you have any Q's I hope I can assist.
Best Regards to you and all.

 
Old 05-13-2009, 09:26 AM   #4
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llchj HB User
Re: Sjogren's and Dental

Hi all
Most interesting.. My previous rheumotologist had mentioned something about my having Sjogrens, but he was alittle bit crazy so I have since stopped going to him and switched. However, reading this post, maybe he was in the ballpark. So, lets see, I was 17 at the time (now 24) sitting in school, we were eating.. something.. dont remember what now. And. half of my back molar falls out. in class.. gees.
I went to the dentist, got my first root canal, and that was it.
Fastforward three years, crazy DR, mentions something about Sjogrens because my eyes are dry, and so is my mouth. He never ran any blood tests, and shortly thereafter I switched and my new dr has not said anything.
Anyway - maybe crazy guy was on to something.
Since then I had another root canal, if it happens again I am so just getting it pulled.
Thanks
Crystal

 
Old 06-01-2009, 12:33 PM   #5
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4boystolove HB User
Re: Sjogren's and Dental

I have Sjogrens and yes - your mouth is so dry that your teeth are actually decaying all the time because of the dry air (lack of saliva). My doc said at night alot of the decay happens because you are asleep and your mouth is quiet. I take Salgen to help with the dryness. I brush and floss all the time. I have water and sugar free gum all the time. Hang in there. I lost alot of teeth too. I have a flipper because one of my bottom teeth fell out while I was eating an apple. What a mess. My dentist told me that dentures would not be an option for me because of the dryness. Oh well. I guess I'll worry about that later on in life when I do need dentures.

 
Old 06-01-2009, 01:05 PM   #6
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surreygal HB User
Re: Sjogren's and Dental

Hi There:
At 46 years of age, my mouth should be in fabulous shape because I don't smoke or eat junk food, and I eat a really healthy, nutritious diet. But, my dentist loves me because I have SS. I too broke a tooth while eating--right in half horizontally. It had been both root canalled and crowned with a gold cap so this was surprising. I've had tons of dental work done even though I too am careful to floss, brush and chew sugarless gum like there is no tomorrow. I get dental cleanings every 4 months too.
I hope you have a good dental plan because this disease demands it. Take care and best wishes.

 
Old 08-22-2009, 04:26 PM   #7
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Re: Sjogren's and Dental

I believe that many of SS diagnosis is Burning Mouth Syndrome as well, and I've found that since I've had four dental caps implanted in my mouth I have suffered total torment and harassment, and is a nightmare at night.

I have suffered tinnitus, breathing problems, migraines, heart pain, and many other symptoms, and have now realised that radio frequency emissions are the cause of my symptoms.

I live in a retirement village and they have a radio alarm system, and three times it was turned off accidentally and each time my suffering disappeared.

So the modern world of the 21st Century has now brought another insight into what is harmless and safe and what is dangerous, much the same when they said that DDT, Dieldrin, Asbestos, Cigarette Smoking and Passive Smoking was harmless and couldn't kill.

My BMS is caused by the gold-plated metal plates that the dental caps are fitted to, and the RF causes electrosis in the mouth.

I suffer terribly with burning and tingly tongue, mouth, throat and choking feeling, breathing problems and heart pain every since these dental caps have been fitted.

RF is causing many of our problems.

 
Old 09-07-2009, 12:43 PM   #8
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Dianescat HB User
Re: Sjogren's and Dental

I was diagnosed with Sjogrens about 10 years ago. Main symptoms dry mouth and eyes and my fingers turn white if they get too cold, even while I am otherwise very warm...
The finger thing is getting more and more frequent.

I didn't realize Sjogrens would affect my teeth, but this summer found out I have two abscesses, one in a previous root canal, one just had a very old filling.

I was surprised because I brush, floss, and have had good dental exams for years. so much so that I skipped the exams for the last 3 years or so.

Neither my doctor nor dentist mentioned dry mouth being a possible cause. I grind teeth at night and maybe that caused a crack? One tooth had a root canal last week, and will get a crown tomorrow... it had two cracks which hadn't spread into the root.
the other has a root canal and one canal is infected, but depending on if the infection has spread into the crown area, it maybe can be repaired, otherwise should be pulled.

what happens to the other teeth if a molar is pulled? it would be a lot cheaper...
I have medicare but no dental insurance

I use listerine or similar mouthwash... maybe will try a non-alcohol one instead, thanks for that tip

 
Old 09-07-2009, 08:04 PM   #9
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Mel52 HB UserMel52 HB UserMel52 HB UserMel52 HB UserMel52 HB UserMel52 HB UserMel52 HB UserMel52 HB UserMel52 HB User
Re: Sjogren's and Dental

Diane, you asked what happens if a molar is pulled out. If it is a bottom tooth, the upper tooth above will start dropping down. I was told I would lose the tooth in about 10 years. It has been 20 and it hasn't happened yet. However, I do wear a retainer at night and that helps keep it stabilized. Your teeth will move and mess up your bite. Again, my retainer helps me. I can't have a bridge put in because there is no tooth to anchor to as it was the tooth under the loose bridge that had to be pulled. I did not want an implant.
I have had 3 root canals on one side. I still get pain and there is no nerve there. I have severely dry mouth.
The rheumotologist I have seen through my aquired HMO, has only diagnosed me with sicca syndrome ignoring previous diagnoses. She offered to do a lip biopsy which I will probably end up doing. In the meantime, I followed her advice and chew sugarless gun and use the biotene mouth wash.

 
Old 09-08-2009, 04:21 AM   #10
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BMS245 HB User
Re: Sjogren's and Dental

Quote:
Originally Posted by llchj View Post
Hi all
Most interesting.. My previous rheumotologist had mentioned something about my having Sjogrens, but he was alittle bit crazy so I have since stopped going to him and switched. However, reading this post, maybe he was in the ballpark. So, lets see, I was 17 at the time (now 24) sitting in school, we were eating.. something.. dont remember what now. And. half of my back molar falls out. in class.. gees.
I went to the dentist, got my first root canal, and that was it.
Fastforward three years, crazy DR, mentions something about Sjogrens because my eyes are dry, and so is my mouth. He never ran any blood tests, and shortly thereafter I switched and my new dr has not said anything.
Anyway - maybe crazy guy was on to something.
Since then I had another root canal, if it happens again I am so just getting it pulled.
Thanks
Crystal
Mate, I had a number of biopsies for SS, and they all proved nothing.

After root canals, which I believe were not necessary, my health deterioated.

Mate, RF today is causing many of our problems, particularly if you have amalgam fillings, had root canals, and have dental caps mounted in your mouth on gold-plated plates.

It all comes about by electrosis in your mouth, particularly at night time as all these emanations increase with the excess use of power, and all things like that.

Read my other article I posted on BMS and SS.


 
Old 09-08-2009, 04:27 AM   #11
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BMS245 HB User
Re: Sjogren's and Dental

Quote:
Originally Posted by Mel52 View Post
Diane, you asked what happens if a molar is pulled out. If it is a bottom tooth, the upper tooth above will start dropping down. I was told I would lose the tooth in about 10 years. It has been 20 and it hasn't happened yet. However, I do wear a retainer at night and that helps keep it stabilized. Your teeth will move and mess up your bite. Again, my retainer helps me. I can't have a bridge put in because there is no tooth to anchor to as it was the tooth under the loose bridge that had to be pulled. I did not want an implant.
I have had 3 root canals on one side. I still get pain and there is no nerve there. I have severely dry mouth.
The rheumotologist I have seen through my aquired HMO, has only diagnosed me with sicca syndrome ignoring previous diagnoses. She offered to do a lip biopsy which I will probably end up doing. In the meantime, I followed her advice and chew sugarless gun and use the biotene mouth wash.
Mel, I'm am amazed how there is so many root canal procedures in the dental fraternity. They never existed years ago, and my two root canals I had have always been sensitive and became worse over the past two years. In fact I have one of them removed and I will probably have the other one removed.

Also, I've noticed the increase of all of these dental problems, and many try to make out that the problem is mental.

They use that many "syndromes" these days is because many do know what is causing it. If brain surgeons are speaking out in regards to the increase of brain tumour in children under the age of 12 and adults under the age of 26 years being caused by mobile phones and cordless phones, then what do you think happens when a RF signals goes through metal in our mouths.

The RF signal causes electrosis, which is basic school science.

Think about it?

 
Old 09-08-2009, 08:45 PM   #12
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Mel52 HB UserMel52 HB UserMel52 HB UserMel52 HB UserMel52 HB UserMel52 HB UserMel52 HB UserMel52 HB UserMel52 HB User
Re: Sjogren's and Dental

The dentist who did the root canals left a temporary in for almost 9 months and I went every week to get it repacked (no additional charge) until the pain subsided. His feeling was that having fibromyalgia affected the sensitivity. He has a sister bedridden with it.
I was the one who was begging for root canals. I had only one tooth that was cracked. I haven't had any problems in almost 2 years now. (fingers crossed)

 
Old 10-11-2009, 08:09 AM   #13
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aetatis HB User
Re: Sjogren's and Dental

I have Sjogren's and several other autoimmune issues. My main problem recently is severe dental decay. The dentists I have seen (just moved to the DC area) have been not helpful. I have never smoked, no drinking, vegetarian for 30 years. Yet, the dentists I have seen certainly lack the skill and tact in understanding how embarrassing it is for me to have anyone discuss the shape of my teeth.

Yesterday I was advised by the primary care doctor to see Urgent Care for a severe sore throat. The PA looks in my mouth to examine my throat and makes an extremely rude comment about the condition of my teeth.

Does anyone on this board live in the DC area and have recommendations? I hate the thought of losing my teeth. I have a partial that is awful to wear since my mouth is always dry. I only drink water and carry a bottle with me at all times. When I have dental work done, I have to have platelet infusions because of a clotting problem. To maintain a semblance of normalcy I need to have my teeth in shape as I work in a government position. Yet, the dental coverage is not as good as our health care. Any advice or suggestions would be appreciated. I also have osteoporosis and the breakdown of bone is another dental issue as well. Obviously I need a dentist or specialist that can treat this effectively. Thank you.

 
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