It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Sjögren's Syndrome Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 10-01-2008, 10:24 AM   #1
Newbie
(female)
 
Join Date: Oct 2008
Location: mass
Posts: 4
waterss1 HB User
Diagnosed with ms and sjogrens

Now that I been on line reading about ms and sjogrens, how common is it to have both?

 
Old 10-01-2008, 03:50 PM   #2
Junior Member
(female)
 
Join Date: Oct 2007
Location: sc,usa
Posts: 15
GINGERGIRL99 HB User
Re: Diagnosed with ms and sjogrens

there are many studies and journals out there to read,that said...they are both autoimmune disorders. i think you can have both but it is not normally linked together like lupus and sjogrens or rheumatoid .sjogrens can manifest in symptoms like MS with it's neuro component though rather rare. I am struggling with this issue currently as well. I do have sjogrens and some rather strange symptoms...... how about you? i found most of my info by just by tediously seaching journals and published studies online.... i have had 2 years. ha ha

 
Sponsors Lightbulb
   
Old 10-15-2008, 02:44 PM   #3
Member
(female)
 
Join Date: Jul 2005
Posts: 78
Mickey32 HB User
Re: Diagnosed with ms and sjogrens

Hi. I just thought I would reply and let you know that I have both ms and Sjogren's. I was diagnosed with ms first, and then I was diagnosed with Sjogren's through a blood test a few years later.

 
Old 11-13-2008, 05:21 PM   #4
Newbie
(female)
 
Join Date: Oct 2008
Location: mass
Posts: 4
waterss1 HB User
Re: Diagnosed with ms and sjogrens

Same for me, first came ms then sjogrens! How are you doing?

 
Old 12-06-2008, 01:39 PM   #5
Junior Member
(female)
 
Join Date: May 2008
Location: Chula Vista, California
Posts: 34
angeles0209 HB User
Re: Diagnosed with ms and sjogrens

Hi Everyone

I was diagnosed with MS in 2002 and since then my lab test have came back with elevated counts on sjogrens. And I also have terrible leg/cramps/pain. No eye/mouth dryness. But, everytime I have blood work done levels for sjogrens is elevated. The interesting thing is that my doctors have said not to worry about it. That the labs must be wrong!!!! I think I should be seeing my doctor about this! Just does not make sense. MS and Sjogrens they are both autoimmune disease

Last edited by angeles0209; 12-07-2008 at 03:14 PM. Reason: wrong question

 
Old 12-10-2008, 11:51 AM   #6
Newbie
(female)
 
Join Date: Oct 2008
Location: mass
Posts: 4
waterss1 HB User
Re: Diagnosed with ms and sjogrens

hi to all
Thank you for responding, I guess the conflicting reports that the two diseases do mimic each other as what I found out. That if on your MRI's the lesions are larger then 3mm in the white matter it is ms and if lesions are only smaller then 3mm in the white matter it is sjogrens. For myself dry eye, dry mouth, my blood ANAchoice are postive, SSB Anibody are positive and lesions on my MRI's are larger then 3mm in the white matter and many smaller ones.
Hope this is helpful

 
Old 12-10-2008, 07:09 PM   #7
Junior Member
(female)
 
Join Date: May 2008
Location: Chula Vista, California
Posts: 34
angeles0209 HB User
Re: Diagnosed with ms and sjogrens

Waterss1

Thanks for the information. I will look into that.

Angeles

 
Old 04-15-2009, 04:44 PM   #8
Member
(female)
 
Join Date: Apr 2009
Location: BC, Canada
Posts: 71
surreygal HB User
Re: Diagnosed with ms and sjogrens

Hi There:
I was originally diagnosed with M.S., but now the main school-of-thought is that I have CNS involved Sjogrens instead. My original neurologist thinks I may have both, as it is the same destructive anti-body which is believed responsible for both diseases. However, other neurologists, and Elaine Alexander, a neurologist who has done extensive testing on the subject, believes a patient will have only one or the other disease. May I ask why you have been diagnosed with both? Did you test positive in your Cerebral Spinal Fluid for oligoclonal bands? This would indicate M.S., but not conclusively. I am not disputing what your experts have diagnosed you with. I am merely looking to find out what renders the diagnosis of both diseases concurrently, as there is much back-and-forth between my specialists about me in this regard. Thus far, I'm only being followed for Sjogren's. Any thoughts would be most welcome.
On a personal note, how are you coping? It must be very spiritually wearing to live with both these diseases. My thoughts and good wishes are sent to you. Take care.

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
sjogrens syndrome cricket123 Sjögren's Syndrome 7 12-20-2011 02:19 AM
New Sjogrens Syndrome VELVET121 Sjögren's Syndrome 4 04-21-2010 11:09 AM
how long before you are diagnosed with sjogrens can `you have it leisabb Sjögren's Syndrome 1 02-05-2009 11:16 AM
Sjogrens and Osteoporosis? patriciaf Sjögren's Syndrome 6 08-04-2008 11:47 PM
Question About Neuralgia's with Sjogrens Tulip15 Trigeminal Neuralgia 5 02-19-2008 11:19 AM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



boobootwo (8), luca689 (7), quincy (4), ladybud (4), Knot (3), owllover99 (3), dltt48 (3), ablondegypsy (2), blb2037 (2), bluelakelady (2)

Site Wide Totals

teteri66 (1177), MSJayhawk (1004), Apollo123 (903), Titchou (847), janewhite1 (823), Gabriel (758), ladybud (753), sammy64 (668), midwest1 (668), BlueSkies14 (610)



All times are GMT -7. The time now is 01:32 PM.



Site owned and operated by HealthBoards.com™
Terms of Use © 1998-2014 HealthBoards.com™ All rights reserved.
Do not copy or redistribute in any form!