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Sjögren's Syndrome Message Board
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Old 11-03-2008, 09:25 PM   #1
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wallyboy HB User
Weight loss and Sjogrens

I am male 53 years old , recently diagnosed with this disease. Have lost a lot of weight, is this normal.?

 
Old 11-15-2008, 06:00 PM   #2
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vic77 HB User
Re: Weight loss and Sjogrens

I have heard if people with sjogren's have lost a lot weight quickly, they should be tested for lymphomia. As I am new to this disease, I am not sure about this, but if it were me, i sure would check it out.

 
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Old 11-16-2008, 06:13 AM   #3
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trikirodger HB User
Re: Weight loss and Sjogrens

I haven't heard about weight loss being symptomatic of sjogrens's, unless you have changed your diet due to discomfort of the mouth. I get rashes periodically which restrict what I can eat. Because the body is primarilly made up of water...anything can happen. On the contary, I've gained weight and I teach 15 (yes 15 and it's takes all I can do) fitness classes a week. I'm 52 so it is normal that I would gain weight, but still keeping a high level of fitness, I believe it is associated with the meds I take for my symptoms with sjogren's. By the way, women generally are more prone to develop sjogren's. It will be interesting to hear what is happening with the regards to the men who live with sjogren's. Keep us informed.

 
Old 11-16-2008, 08:29 PM   #4
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patriciaf HB User
Re: Weight loss and Sjogrens

Gluten intolerance (even so far as to have Celiac Disease) is very common with Sjogrens and can cause weight loss. Have you been checked for that? Either way, you may wish to stop eating glutens and see what happens.

 
Old 11-17-2008, 04:13 PM   #5
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yelly77 HB User
Question Re: Weight loss and Sjogrens

Quote:
Originally Posted by wallyboy View Post
I am male 53 years old , recently diagnosed with this disease. Have lost a lot of weight, is this normal.?

 
Old 11-17-2008, 04:19 PM   #6
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yelly77 HB User
Re: Weight loss and Sjogrens

Hello and yes it is very common and one of the earliest clues. I have Sjogren's and it took over three years to get a diagnosis and I had found it in the blood work after picking up my medical records from the third Primary Care Physician I had gone to without getting any help or a diagnosis.

I lost over 30 pounds and had horrible cramping like sensation in my throat. It then progressed into my stomach and I am now on IV Immunoglobin Infusion therapy for the neuropathy. Sjogren's can do very little to you or a verry lot! You are YOUR BEST MEDICAL ADVOCATE and I can only tell you to TRUST everything you feel that is going on in your body and think SJOGREN'S. Most people with it go from doctor to doctor as it can cause many problems in different parts of the body and yet, very few doctors in America speak with one another so the average lenght to diagnosis is like three to six years. I think you are very aware as you picked up the weight loss association and yes it is very common.
Best of luck

Last edited by yelly77; 11-17-2008 at 04:31 PM.

 
Old 11-18-2008, 12:08 PM   #7
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trikirodger HB User
Re: Weight loss and Sjogrens

I'm very interested in your response. Did you ever find out what "exactly" was causing the cramping. Not that it was a "symptom" of sjogren's, but the the cause of it. I have a lot of digestive problems, one being intermitant cramping in my stomach. My esophugus has begun to burn when I eat or drink, as well as terrible heartburn. My stomach has begun to bloat within the first few bites of food. Does any of this sound familiar to you? No weight loss, weight gain. I have been thin all my life, but in the past year I have gained 20 lbs. Nothing different in my lifestyle except the passage of years. Any insight would be appreciated.
One more thing in resonse to your comment about people going from doc to doc. This is very true because of all the symptoms. If I have any procedure, labs, etc., I get a copy of the report, then make copies and send or take them to the doctors that I am seeing. You are absolutly correct, you have to stay on top of youself, because the doctors have far too many patients and the patient has one: themselves.

Last edited by trikirodger; 11-18-2008 at 12:17 PM. Reason: added info

 
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