It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Sjögren's Syndrome Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 04-14-2009, 04:17 PM   #1
Member
(female)
 
Join Date: Apr 2009
Location: BC, Canada
Posts: 71
surreygal HB User
Smile i have neuro sjogrens too

Hi there. I read a post about a person who was wondering if anyone else has CNS involved or neurological involvement of SS. I do. I also have vasculitic involvement. In fact, today my GP has ordered a CT brain scan to see what's up because I seem to have alot of signs/symptoms of cererbal vasculitis. I have had several brain MRIs that show "ubo's"-unidentified bright objects, so I know I have brain lesions but they seem pretty static, which refuted my first diagnosis of M.S. I get all kinds of weird symptoms: foot dragging, urinary urgency, "holes" in my vision, optic and cerebral migraines, numbness to extremeties and face, droopy right eyelid etc. The worst symptoms include acute and violent nausea (thank goodness for Stemetil!) and crippling fatigue. I'm not on any SS medication because I'm not a candidate for Plaquenil due to the visual disturbances I get frequently--Plaquenil shows toxic with visual disturbances so mine would go undetected. SS isn't a fun disease, but I'm determined to live my life as best I can. I cycled 62 kilometers in the rain on Sunday, and as soon as this headache passes, I will return to work and it will be on my bicycle! Best wishes to my fellow SS cohorts. Take care.

 
Old 04-14-2009, 05:12 PM   #2
Member
(female)
 
Join Date: May 2008
Location: Middletown, NY, USA
Posts: 59
Babs659 HB User
Re: i have neuro sjogrens too

Hi, there. Do you get lightheaded or dizzy?

 
Sponsors Lightbulb
   
Old 04-15-2009, 04:31 PM   #3
Member
(female)
 
Join Date: Apr 2009
Location: BC, Canada
Posts: 71
surreygal HB User
Re: i have neuro sjogrens too

Hi back at you! Yes, I suffer dizziness and vertigo frequently. Take care.

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
sjogrens syndrome cricket123 Sjögren's Syndrome 7 12-20-2011 02:19 AM
New Sjogrens Syndrome VELVET121 Sjögren's Syndrome 4 04-21-2010 11:09 AM
Neuro problems with sjogrens or fibromyalgia VELVET121 Sjögren's Syndrome 2 11-09-2008 01:54 AM
Sjogrens and Osteoporosis? patriciaf Sjögren's Syndrome 6 08-04-2008 11:47 PM
Question About Neuralgia's with Sjogrens Tulip15 Trigeminal Neuralgia 5 02-19-2008 11:19 AM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



boobootwo (8), luca689 (7), quincy (4), ladybud (4), Knot (3), dltt48 (3), owllover99 (3), bluelakelady (2), Angie10 (2), surreygal (2)

Site Wide Totals

teteri66 (1180), MSJayhawk (1004), Apollo123 (904), Titchou (847), janewhite1 (823), Gabriel (759), ladybud (754), sammy64 (668), midwest1 (668), BlueSkies14 (610)



All times are GMT -7. The time now is 02:29 PM.



Site owned and operated by HealthBoards.com™
Terms of Use © 1998-2014 HealthBoards.com™ All rights reserved.
Do not copy or redistribute in any form!