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Old 04-21-2009, 05:32 PM   #1
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do u get electric shocks?

Hi everyone:
I have Sjogren's with brain lesions, so I know I have CNS involvement. In the past I've had all the typical MS symptoms like numbness, tingling, visual disturbances, etc. But, as of yesterday morning I started getting sensations that are like I have stuck my smallest left toe into an electrical socket. It only happened a couple of times yesterday, but today I'm over 3 dozen times. When it happens it starts with a few small sensations, then progresses to full out, feeling shocked with incapacitating sensations. Do you know how your body spasms involuntarily when electrocuted? That is what I do. It takes several seconds to pass, and I feel drained and emotionally disturbed afterwards.
A week ago I had another one of a strange type of incident that I've been getting for these past few weeks. I suddenly feel like I have a sense of something really bad is about to happen, then the room goes very bright and start to feel really "off", and like I'm going to faint; it comes from my head. It isn't a panic attack, because I don't hyperventilate and my heart rate isn't racing. I close my eyes and deep breathe until it passes, which usually takes a few minutes. 8 days ago this same "incident" was followed immediately by a debilitating headache, that caused facial numbness and upset stomach. I tried to ignore it, put it down to yet more weird Sjogren's stuff, but hours later I realized I was having trouble remembering what chore I'd embarked upon, and I also realized I was staggering somewhat while walking. The next day the sick headache was still there (and the numbness in my face) so I went to my doctor who ordered a brain CT scan, which I had done yesterday but don't yet know the results. In the meantime, also as urged by my General Practitioner I had a visit to my optometrist to ensure my eyes were not the cause of this. He ran a battery of tests, determining I have excellent eye health except that the visual field in my left eye shows "wonky" peripheral vision. As such, I'm soon to have a more involved test to see what's up with that.
These intermittent electric shock sensations are overwhelming. I am going to try to see a neurologist about them but heaven only knows how long I'll wait to get that appointment. I go white all over from the episodes, and have to immediately stop what I'm doing and simply breathe deeply, until after the "attack" has passed. Has this ever happened to anyone, and if so, what happened after? What treatment did you receive (if any) or did it subside on its own (and hopefully very quickly).
I could definitely use some hope right now because this is frustrating and scary. Thanks in advance for any advice/guidance you care to offer.

 
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Old 04-22-2009, 11:28 AM   #2
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Re: do u get electric shocks?

Although there are people on the high/low blood pressure boards, sleep boards, brain/nervous system boards/menopause boards, and the MS boards (and probably others but these are the boards I follow) who have experienced electric shocks/buzzin/vibrations, humming/purring, the only people I am aware of who have been sucessfully treated and have their "shocks" go away, are patients who are treated with antibiotics, for Lyme disease.

Lyme is often misdiagnosed as MS.

Bethsheba

Last edited by bethsheba; 04-22-2009 at 01:06 PM.

 
Old 01-06-2011, 01:53 PM   #3
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Re: do u get electric shocks?

Hello Surreygal, did you ever figure out what caused your electirc shock sensations? I am have had those a couple different times too. Today at the come out of nowhere in my AB area, just above my stomach and below my right boob. It was dibilitating. It scared me and felt like an electric shock and burning sensation. It radiated outwards. It happened on and off for about and hour or two. Now I am laying still at home. I did lift this heavy kid out of his wheel chair at school today a couple of times. I work with handicapped children. Do you think this could be it?

I hope you are feeling better. Let us know how you are. Thanks!
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Old 01-06-2011, 10:45 PM   #4
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Re: do u get electric shocks?

Quote:
Originally Posted by TEdds83 View Post
Hello Surreygal, did you ever figure out what caused your electirc shock sensations? I am have had those a couple different times too. Today at the come out of nowhere in my AB area, just above my stomach and below my right boob. It was dibilitating. It scared me and felt like an electric shock and burning sensation. It radiated outwards. It happened on and off for about and hour or two. Now I am laying still at home. I did lift this heavy kid out of his wheel chair at school today a couple of times. I work with handicapped children. Do you think this could be it?

I hope you are feeling better. Let us know how you are. Thanks!
Hello to you:
I'm sorry to hear you are getting the shock sensations. I had those for 4 days straight--they were awful. I rarely get them now, and when I do, they subside again fairly quickly. In my case they seem to typically work upwards from my feet.
My neurologist is not sure why some SS patients get these, but this is not a completely alien symptom to her in SS patients. She believes that most neurological problems occur as a result of vasculitis, which is inflammation of the blood vessels. Blood vessels are the highways between every other organ and system of our bodies. If they are malfunctioning, then our other organs and systems will be adversely affected because nutrients may not be delivered and waste products may not be removed. Vasculitis can also cause bruising. I noticed bruising, small and large size spots in weird places, such as between my fingers, where I knew I hadn't injured myself.
Basically, autoimmune disease causes inflammation. The type of autoimmune disease may result in inflammation in only specific parts of the body in some people or all over in others. For instance, some Rheumatoid arthritis patients only experience joint swelling but others have every organ affected--they can even die young from that disease as a result.
So, I would let your Rheumatologist know what you are experiencing, and asked to be referred to a neurologist who specializes in neurological symptoms resulting from autoimmune disease. As an aside, I developed conscious seizures a couple of years ago, and had a grand mal last January. I 'm on seizure medication now which has helped alot. I wonder if that too has led to almost no "shocks" anymore. My seizure med is called Lamotrigine, and it may be worth asking about a prescription for this in case in can stop the shocks for you. My GP had prescribed Lyrica at the time of my "shocks", but the "shocks" subsided before I could fill the prescription so I don't know if that would have worked for me. I've heard that it isn't effective in some people.
I hope this helps you. Please let me know how it all works out for you. I'm sending you very best thoughts. PS. I don't do much heavy lifting so I suspect that was not the cause of your problems--just my 2 cents worth. Take care.

 
Old 01-07-2011, 05:30 PM   #5
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Re: do u get electric shocks?

I get them too in different parts of my body. Last night they were on the side of my head. That was a new one. I don't get answers from drs other than blaming it on my fibromyalgia. I do have sicca snydrome but my new rheumotologist said I don't have sjogran's because of negative ana. He says my health plan doesn't have a qualified dr to do a lip biopsy. I was once diagnosed with mixed connective tissue disease. I asked the neurologist about the shocks and she was clueless. They come and go

 
Old 01-07-2011, 10:42 PM   #6
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Re: do u get electric shocks?

Oh Thank goodness you two responded. I am so sorry you have the shocks too, but at least someone believes me. Wow! It's like people look at me like I am nuts when I say I have an electric sensation. I nearly broke out in a sweat when it has happened. Its like a painful electric burning sensation that strikes a given area and radiates out. Scared the crap out of me. I have had it hit other area's besides my upper AB area. I have had it in my legs and arms. Just little *****ly heat sensations. But a little electrical. The stomach Ab area was terrible. I tried to rub it out. It did NOT happen in that area today thank the Lord. I do remember this happening to me a couple years back when I was low on Vitamin D. I pray that it is as simple as that. Back at that time I went to a neurologist and she ran tests and found nothing wrong with me. I kind of hate to go again. But will if I need to. I do have hypothyroidism but it's under control with my med. But I will have that tested again too. Gee this kind of thing is so tricky. But if it becomes a pattern I pray there is something to treat this.

Any advice and thoughts are greatly appreciated. Thanks!!
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Old 01-07-2011, 11:30 PM   #7
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Re: do u get electric shocks?

Hi There:
Don't let a negative ANA or any other blood marker like it rule out SS for your diagnosis. I've had this disease many years and never tested positive for ANA, ENA, Sed Rate, Rheumatoid Factor or the SS antibodies. My lip biopsy however was profoundly positive, and long after that result came in, I noticed sicca symptoms, but I think I'd had transient mild ones previously, so mild I'd discounted them. I have an Extended Health Plan that covers some dental procedures, and an Oral Medicine Specialist performed my lip biopsy. I paid a small percentage of the cost of the procedure. It' very important to have a pathologist read the specimens who is trained to recognize white cell infiltration in minor salivary glands, which diagnosis SS. Failing to find this type of pathologist will OFTEN lead to an improper negative lip biopsy, one that actually is positive but misread. Good luck and I wish you well.

 
Old 01-07-2011, 11:36 PM   #8
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Re: do u get electric shocks?

HI again:
You're not nuts!! This type of symptom happens alot. Have you had Electomyography studies done? They aren't pleasant but they can help detect the origin of neurological dysfunction. Mine detected undiagnosed and previously virtually asymptomatic carpal tunnel syndrome in both my wrists. EMG studies are where probes are inserted through the skin and into the underlying muscles, and then mild electrical shocks are applied with the muscular responses graphed and interpreted by the neurologist. As I say, not fun, but these tests can be useful to help figure out the causes of weird neuro symptoms. Take care and please know that you're not alone, and definitely NOT nuts!

 
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