I lead a support group in Indianapolis. We meet several times a year. Sometimes just to share what we are going through and what has helped us since our last meeting.
Also three times a year I invite a medical professional to come give thier information on Sjogren's.
I suggest getting involved with a group. Even if you feel you know it all there will be times you will need help.
At my group we invite family/care givers as well. I feel it is just for the family members to know what our syndrome is doing to us.